@MyNews13@misshelenasue @aliceraeherman Thank you for helping to spread our story! You can follow us on Twitter, TikTok, and Instagram at @miracleformax and on Facebook at A Miracle For Max.
One Orlando family has spent the last year searching for a cure for TBCD — a rare genetic condition — raising more than $140,000 in the process in an effort to save their young son, reports @aliceraeherman.https://t.co/XcklPLjt00
Forming a support group for adults who bought a ton of Halloween candy to "get ahead of things before the Halloween rush" and then gradually ate most of it #halloween#parenting#spookyseason#adultlife
A big THANK YOU to PinSeeker Game for adding The TBCD Foundation to your charity rotation!
If you play on a golf simulator running E6 Connect and you want a fun way to contribute to a variety of wonderful causes, you can download the app and join in.
https://t.co/VmJlYyXetS
A huge thank you to @thisisinsider for covering Max's story, to @PollyAnnaWrites for writing it, and to @RebekkaReynolds for connecting us to make it all happen.
https://t.co/bDvzpMfkiG
This #fridaymorning, my family is trying to save my two year old's life. We need $2 million to get to clinicals for TBCD at @nationwidekids. We desperately need help spreading his story. If you could take one second to hit share, you'd be our hero.
This #fridaymorning, my family is trying to save my two year old's life. We need $2 million to get to clinicals for TBCD at @nationwidekids. We desperately need help spreading his story. If you could take one second to hit share, you'd be our hero.
Max is 2 and has a condition called TBCD. Most kids lose all purposeful movement by age 4 and die by 5. In 2022 we've started a 501c3 foundation, raised $100k, and started working with a research team. One catch - we need $2m. PLEASE tag any outlet or show who might cover this!
Max is 2 and has a condition called TBCD. Most kids lose all purposeful movement by age 4 and die by 5. In 2022 we've started a 501c3 foundation, raised $100k, and started working with a research team. One catch - we need $2m. PLEASE tag any outlet or show who might cover this!
Beep beep! Max has been waiting for months for his @PermobilUSA Explorer Mini with no progress, so we finally gave up and got him a Bumper Buddy on @amazon instead.
He's so happy to finally be able to reach the mailbox on his @LittleTikes playhouse!
Hi! I'm Max. I have TBCD, which paralyzes most kids completely by 4 years old. The avg lifespan is under 5. We're funding research at @nationwidekids to find a treatment. We need an estimated $2 million to get to clinicals. Please help? https://t.co/ydoMAfthgH