Missy Longman

President, Co-founder of the Smith-Magenis Research Foundation. Author of

[Missy Longman @missysienna]

Thanks Steve!

[Missy Longman @missysienna]

Today is Rare Disease Day and we love someone Rare 💗Smith-Magenis Syndrome (SMS) is considered a rare disease (or disorder). Funding for research of rare disorders is scarce. Please consider a donation of $17 or more to https://t.co/kJBMdFz2fB to support research of SMS.

[Missy Longman @missysienna]

Get involved in Rare Disease Day on February 28th https://t.co/6k2dMY3EjZ

[Missy Longman @missysienna]

Get involved in Rare Disease Day on February 28th https://t.co/6k2dMY3EjZ

[Missy Longman @missysienna]

@realDonaldTrump You’ve lost your mind.

[Missy Longman @missysienna]

Have you seen our latest news? https://t.co/xFwKMk6oTT

[Missy Longman @missysienna]

2019 Brings Change at the SMS Research Foundation https://t.co/xFwKMk6oTT

[Aly Sheehy Ⓥ @Aly_Sheehy]

This is a thread of the stories of people that were in that building. Spread this. Amplify their voices. It’s a first hand look into what really happened and it’s really important to share. #neveragain https://t.co/PcEpZVcLwM

[Missy Longman @missysienna]

@cameron_kasky THE most accurate political statement I’ve ever read. Welcome to the new age. It’s about damn time.

[Missy Longman @missysienna]

@Emma4Change YES!!!! Fierce 🙌

[Missy Longman @missysienna]

@cameron_kasky Vote em OUT! #NEVERAGAIN

[Missy Longman @missysienna]

@delaneytarr Yes! Keep doing the thing!!

[Missy Longman @missysienna]

@AP_Oddities Can we pass these out in North Korea? Maybe they will help calm everyone down.

[Missy Longman @missysienna]

@realDonaldTrump It's so frustrating for a narcissist to not have his ego stroked 24 hours a day. SMH.

[Bill Clinton @BillClinton]

Our fellow Americans in Puerto Rico and the US Virgin Islands are in peril. They need our help now.

[Missy Longman @missysienna]

@realDonaldTrump You know what's "sad"? Tweeting more about this nonsense than about the dire needs of your fellow Americans in Puerto Rico. SAD!!

[Missy Longman @missysienna]

New post on Rarely Perfect: Caregiving and Anxiety, Part 2: Staying Sane in the Midst of Insanity | Rarely Perfect https://t.co/aprOxS0X1Y

[Missy Longman @missysienna]

I've created a space to share my thoughts and experiences with special needs and parenting. Take a look around:-) https://t.co/HNsVXKyRDs

[Missy Longman @missysienna]

@CTMQ @DrJillStein seriously!!

[SMS Research Foun @SMSResearchFoun]

In case you missed it! Gene therapy project for SMS funded by the SMSRF! Full presentation here: https://t.co/BG6PcdrTOM