Historic news for the #mito community π
The FDA has approved the first-ever treatment for TK2d.
This follows the recent approval of Forzinity for Barth syndrome β progress is happening.
Full statement from IMP: https://t.co/Vj7GzTAev4
#RareDisease#TK2d#MitochondrialDisease
Featured experts:
Dr. Isabel Lopez Sanchez (Australia)
Prof. Filipe Chicani (Brazil)
Dr. Marzia Camera (Italy) ποΈToday β Friday, 19 September 2025 π 15:00β17:00 CEST π Online β Register https://t.co/pAQpBQKoIT π
Raise awerness for LHON: https://t.co/uNbKmNSApR
Donβt forget to join us this afternoon for a free online webinar on Exploring the Power of Nutrition in Mitochondrial Diseases to celebrate LHON Awerness Day!
Nutrition plays a vital role in supporting mitochondrial health. This special session brings together international
experts and patient perspectives to share insights, research, and practical strategies. π’ Highlights of the session: β The latest updates on LHON research β Practical guidance on nutrition and mito care β Opportunities to connect with the global mito community π€
LHON Awareness Day
19 September 2025
LHON is a rare mitochondrial disease that causes sudden vision loss, often affecting both eyes in weeks. There is no cure.
Share to raise awareness.
https://t.co/FhwEl0HAWk
#LHONAwareness#DecodeTheMitoPuzzle#WorldMitoWeek2025
#MitochondrialDiseases can affect any organ, at any age, with no cure.
Take action this #WorldMitoWeek2025! Raise awareness, support research, and help push for better care.
Learn more: https://t.co/FhwEl0HAWk
#Mito
Explore the science and stories behind LHON this Awareness Day.
Join our free webinar on 19 Sept, 15:00β17:00 CEST, with global experts on #LHON, vision loss, and advocacy.
Register: https://t.co/pAQpBQKWyr
#LHON2025#DecodeTheMitoPuzzle#MitochondrialDisease
This #TK2dAwarenessDay, hear from Lisa, Aneesa & Viviane as they share their journeys with #TK2d, a devastating type of #MitochondrialDisease. Their voices tell a story of loss, struggle, resilience & hope. Watch the full video at https://t.co/E0SfsFI4MB #TK2dTogether
Understanding the science behind mitochondrial diseases helps explain its complex symptoms.
When researchers, clinicians, and patients work together, it leads to better care.
https://t.co/FhwEl0I8LS
#WorldMitoWeek2025#MitochondrialDiseases#DecodeTheMitoPuzzle#Mito
Join us for the free #LHONAwarenessDay2025 Webinar: "Exploring the Power of Nutrition in Mitochondrial Diseases"
Friday, 19 September, 15:00β17:00 CEST
Experts will share insights on LHON, vision loss, and nutrition.
https://t.co/hb7NCNTrnj
Save the Date! #TK2dAwarenessDay - Tuesday, 9 September 2025
#TK2d is a rare and progressive mitochondrial disease with no known cure. Raising awareness can lead to earlier diagnosis.
https://t.co/FhwEl0I8LS
#TK2dAwareness#WorldMitoWeek2025
Mitochondria are our body's batteries. When they donβt work properly, it can disrupt energy production and lead to a wide range of symptoms.
Understanding improves diagnosis and treatment.
Learn more: https://t.co/FhwEl0HAWk
#WorldMitoWeek2025#DecodeTheMitoPuzzle#Mito