Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.
RT:Sometimes stories become personal for us.This is one of those stories for me.6 months ago I met 5 local people battling ALS.Since then,1 has died and others are declining rapidly.I hope you’ll watch tonight at 6PM.The clock is ticking for lawmakers and the FDA to do SOMETHING
My husband and I fought for continued access to treatment and to improve an archaic regulatory pathway. He died waiting for change, writes Nicole Cimbura https://t.co/ZY6nG9KIFn