Margie

[Margie @mmg235]

@CDCgov @MedicareGov When will the Medicare systems be updated to pay for the new Covid vaccine?
CVS has availability but is indicating payment required until Medicare is updated.

[Margie @mmg235]

@ahandvanish I have to have the saline IV at a very slow drip or it does increase brain fog.

[Margie @mmg235]

@CSiriano @Zendaya Wow!!

[Margie @mmg235]

@DafoeWhitney Previsualization is so well articulated - the feelings you describe are exactly what happens.

[Margie @mmg235]

@Be_Kinderr @MTackCVS Curious how the 80% is determined?

[Margie @mmg235]

@LisaAMcCorkell @patientled @itsbodypolitic This is an excellent presentation. Would love to see 60 minutes do a segment on Long Covid and ME/CFS.

[Margie @mmg235]

@benh_mecfs @durrant_marina @AshleyHaugen88 @JanetDafoe @DafoeWhitney @CFSRC Thanks for the summary Ben - it was a nice gift!

[Margie @mmg235]

@DafoeWhitney Whitney - your replies are telling you - you are “an established documentary photographer and filmmaker, artist and activist, with accomplishments to show for decades of hard work” I know not the way you dream of but your journey through this illness is artistry from your soul.

[Margie @mmg235]

@DafoeWhitney @JanetDafoe @FarazFallahi @benh_mecfs @AshleyHaugen88 @CFSRC The former! I totally rely on Ron deciding when to tell us.

[Margie @mmg235]

@kristie_krause Thanks. If you hear anything else could you let me know.

[Margie @mmg235]

@kristie_krause I saw you contacted Rite Aid multiple times re appts for 65+ but under 75 in Philly. I have multiple family with Philly appts - one this week, some out as far as Mar 10th. What is the latest info? I can understand them changing the rules but not canc those made

[Margie @mmg235]

@AdamFreemer @QuadDraw @6abc @CBSNews @CBSPhilly @ABC7NY @NBCNewYork @nbcbayarea @NBCLA @ABC @NBCNews @FarFarrAway You are doing a great job! It's nice to have angels. LOL the available ones go in seconds - they are gone in under a minute. Hopefully things will keep improving. TY

[Margie @mmg235]

@DafoeWhitney @meaktuell Whitney - so happy you are seeing improvement. How can we/our doctors find out “the right way”?

[Margie @mmg235]

@moisesvm @NYTmag TY for the research invested in writing this article &accurately describing ME/CFS. I recommend further info can be gleaned in a new book published early Jan 2021: The Puzzle Solver by Tracie White and Ron Davis Phd, a world renowned ME/CFS researcher now studying long haulers.

[Margie @mmg235]

@ahandvanish @MBVanElzakker Thanks so much for transcribing!

[Margie @mmg235]

@JanetDafoe @minadjenkins Janet - you always express everything with great clarity!

[Margie @mmg235]

Finally finished putting my Halloween decorations away and I only had a few glass pumpkins and a few candles. Is it Christmas yet? 😄

[Margie @mmg235]

@jenbrea @unrestfilm @netflix Jen- with Unrest mention in The Puzzle Solver,there will be new interest in it. Can that help keeping it on Netflix?

[Margie @mmg235]

@JanetDafoe Janet - your heart will be the standout! Just finished the book. Have ME/CFS 14+ yrs. I am buying a copy for my primary and my Rheumatologist They need to understand the human side of this disease. Already sent a copy to a friend, and will send links to my zoom book club TY, TY

[Margie @mmg235]

Dropped off my ballot today. Proudly wearing this.