Join us for our annual Black Ties & Blindfolds event at Margaritaville. This year will be extra special since we are also celebrating 10 years as a non-profit. https://t.co/lGzOVNASh1
This is what getting an ERG test looks like. If you want to know more, let us know and we can walk you through it from the patient's (and his mom's) perspective. https://t.co/EB4tXK1XGv
@fight_blindness@HSELive@INFO_NCPE They need to support and reimburse this treatment! If not they should be the one that has to tell a child, sorry it's too expensive.
We're calling on the @HSELive to reimburse life-changing gene therapy Luxturna®. Today, the @INFO_NCPE recommended that the HSE does not fund the life-changing gene therapy. We believe the final judgement should go beyond economics: https://t.co/CnCj6jfQ3u
@HellsKitchenFOX On tonight's Hell's Kitchen where Nick complained about Millie's poor car washing skills by asking him, "What are you Helen Keller or something?" the show, and by association, Gordon showed ignorance and acceptance of discrimination against the visually impaired.
@gordonramsey On tonight's Hell's Kitchen where Nick complained about Millie's poor car washing skills by asking him, "What are you Helen Keller or something?" the show, and by association, you showed ignorance and acceptance of discrimination against the visually impaired.
REMINDER | Families, today is the day to inform us of your technology needs. Click here to complete the survey online which can be completed on a computer or a cell phone: https://t.co/SZvdSDv4Mm. Families who have no other way of completing the survey should call 904-348-5200.
Today is rare disease day and my family has been living with x-linked juvenile retinoschisis for generations. Please join my non profit, MOMS for Sight, this year at our annual Black Ties & Blindfolds gala! Let's end this diseasr! https://t.co/X7Afm9hMGd
The cane represents freedom and independence. For those children born with a retinal degenerative disease, it represents fear and anxiety. At MOMS for Sight, we support families living with these diseases. Come to our gala to support sight saving research! https://t.co/X7Afm9hMGd