Cindy's FTD Journey

My mom was diagnosed with Frontotemporal Dementia when she was 56. I'm a more recent stroke survivor. #FTD #Dementia #Strokesurvivor #Stroke

[Cindy's FTD Journey @monkeyami]

Rare Disease Day - Frontotemporal Dementia! https://t.co/LWaOGmUDHa A form of dementia on the rare disease list? Dementia is so common! No Way!

BUT

YES, Frontotemporal Dementia is a RARE DISEASE!

#ShowYourStripes #RareDisease #RareDiseaseDay #EndFTD #DementiaUnder60

[Cindy's FTD Journey @monkeyami]

@mikejwhelan Beautiful all around. ❤🙏

[Cindy's FTD Journey @monkeyami]

@mikejwhelan I'm so so sorry! Thank you for sharing your love and caregiver story! Prayers and hugs! 🙏 ❤️

[Cindy's FTD Journey @monkeyami]

Learn more about Frontotemporal Dementia from the family of Bruce Willis. #FTD #Dementia #Frontotemporal #BruceWillis https://t.co/7zWbZRYxkc

[The AFTD @AFTDHope]

FTD often strikes during the prime of life, typically between ages 45 and 64, when many are raising families, building careers, and planning for the future. Its impact is profound, both emotionally and financially, with an average annual cost nearly double that of Alzheimer’s.

🧠 Raising awareness is key to earlier diagnoses and better support.

🔗 Learn more: https://t.co/NFjt8FHwxu

[Alzheimer's Association @alzassociation]

June is Alzheimer’s & Brain Awareness Month! Repost to raise awareness for the more than 55 million people worldwide impacted by Alzheimer’s and other dementia. Take action at https://t.co/DoYmIZD5ll. #ENDALZ

[Kate Curler @Curlerlaw]

My Husband Was Diagnosed With Dementia at 36. Here’s How I First Knew Something Was Wrong

https://t.co/OjWetGlVXS

#elderlaw #estateplanning #guardianship #probate #elderlawyer #trust #elderlawattorney #lawyer #estateplanningattorney #attorney #estateplan

[Alzheimer's Association @alzassociation]

Today Wendy Williams’ team shared that the former talk show host is living with primary progressive aphasia & frontotemporal dementia. We hope publicly sharing her diagnosis helps break down stigma and enables others facing dementia feel less alone. https://t.co/W1iYMWkUqM

[The AFTD @AFTDHope]

The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement.

“In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),” her care team said in the statement.

Click here to learn more: https://t.co/r52YThlc3c

[Cindy's FTD Journey @monkeyami]

@ajoycruz @ourftdjourney Cherish the miracles and positive moments! I'm so glad to hear this! That is so cute about your daughter! ❤ Thank you for the update! I'm praying and thinking about you and your family! It's never easy going through a trial like this in life! #endftd

[Just a care home girl @Justacarehomeg1]

Attended a funeral today and heard a really touching comment about #dementia...the dementia years likened to waving someone off as they drive away, the distance increasing until you can no longer see the person, but you're still there, waving. Very poignant moment.

[TODAY @TODAYshow]

"Honestly he is the gift that keeps on giving," Emma Willis told TODAY's @Hodakotb in studio, adding that as a result of her husband's diagnosis her two young daughters are learning "love, patience, resilience... so much." https://t.co/NE3qe94W7d

[The AFTD @AFTDHope]

🌍 Today marks the beginning of World FTD Awareness Week – a global call to #endFTD. The theme for today is self-care. Whether you're a caregiver, someone with a genetic link to FTD, or directly impacted by it, prioritizing your well-being matters. Here's how you can join in:

1️⃣ Start with a small act of self-care today. Meet up with a friend, take a stroll, relish a favorite spot, or indulge in a good book or some treasured music. Dedicate a few moments to caring for yourself.

2️⃣ Share your self-care journey on social media and inspire others to do the same. Visit this link for messaging and graphics you can share: https://t.co/byQs1SrUlb

3️⃣ Show your support by changing your profile picture on social media. Follow our simple instructions at the link above.

[Kate Lee @KateLeeCEO]

It is #WorldAlzheimersDay.
Busy day at work.
But I just want my mum.
To tell me I’ve got this. She is proud of me.
But she doesn’t know who I am.
She couldn’t speak if she did.
Thousands of daughters are feeling the same this morning. Every morning.
The real face of dementia. 💔

[Ian Kremer @LEAD_Coalition]

Early Warning Signs of #Dementia https://t.co/ZobXXpUkmJ via @clevelandclinic

#Alzheimers #health

[Ian Kremer @LEAD_Coalition]

Jack Hanna's long goodbye: How #Alzheimers is stripping away the man the world once knew https://t.co/sd982GLwEB via @usatoday

#dementia

[Cindy's FTD Journey @monkeyami]

@ajoycruz Thank you so much. I cherish and miss those times that I had with my mom. You mentioning her dance moves made me smile. How is your dad doing? I'm so sorry you are going through this trial right now.

[Cindy's FTD Journey @monkeyami]

@ajoycruz @ourftdjourney @reneesgarden I'm so glad you had a fun visit with your dad! Sending you hugs and hoping your next visit will be fun, too. ❤

[365 Caregiving Tips @365CareTips]

A stroke can occur even if you are the caregiver! Know your risk factors (high blood pressure, diet, inactivity, diabetes, high cholesterol) and do what you can to mitigate those risks. #caregiving #strokeawarenessmonth

[Cindy's FTD Journey @monkeyami]

@ajoycruz Alison, I was thinking of you and wondering how your dad was doing. I just saw this update on your dad. Thinking and praying for you as this journey is so so hard. I'm so sorry you are going through this right now! 🙏 🙏