they ask you how you are, and you just have to say that you're fine, when you're not really fine, but you just can't get into it because they would never understand. https://t.co/O5yVm6mkPV
Join us at the MCDS-Therapy final conference on 30th May!
We're celebrating the outcomes of this international research collaboration by bringing the MCDS and rare bone disease community together.
Register now: https://t.co/OFcBMl1w1X
Your opinion matters!
Help us understand the treatment preferences of individuals living with skeletal dysplasia, musculoskeletal conditions, and specific childhood cancers.
Take part in our survey and make a difference to future decision making!
https://t.co/MQE7Tl4i7I.
📢 Are you living with skeletal dysplasia, musculoskeletal conditions, or specific childhood cancers?
Have your say and help shape future treatments and management strategies!
The survey will take 30 mins to complete and closes on 30th April. 👇
https://t.co/PHGJoxjiqG.
Are you or your child living with a rare bone disease, musculoskeletal condition, or a specific childhood cancer? We want to hear from you!
Make your voice heard on treatment preferences.
The survey takes 30 minutes to complete and closes on 30th April.
https://t.co/dv7yLMihtm
Help understand if/how you're affected by #SkeletalDysplasia in your everyday life by taking a survey!
Michael Wright is the PI on the study!
If you're an adult diagnosed w/ skeletal dysplasia, live in the #UK + are interested in taking part, email [email protected]
Help us understand if/how you're affected by #SkeletalDysplasia in your everyday life by taking a survey!
If you're an adult diagnosed w/ skeletal dysplasia, live in the #UK + are interested in taking part, email [email protected]
Amazing story from a post op Vascular patient! When immobile due to a blocked artery he wore this famous players name on his shirt….now very much mobile he has added an apostrophe to celebrate this! Photos shared with permission & credited to Neil Brinsdon Photography #immobile