Must reading on a path to national recovery from two former FDA commissioners and Johns Hopkins Pandemic Experts: National coronavirus response: A road map to reopening https://t.co/BM1QwPL1Kr via @AEI
We have been continually monitoring COVID-19 developments and CDC guidelines, plus consulting with CF infectious disease experts to provide up to date information for those with CF. https://t.co/j59wvRSs9E. Stay cautious. Stay safe.
‘Tis the CFF chapter annual meeting season! Have had wonderful evenings with the NYC and MD CFF teams/community already, and headed to Boston this week for Mass/RI chapter meeting on Wed night. Nothing better than being together with the CF community! https://t.co/1KdotfQ7Yp
30 years ago this month CFF-funded researchers discovered the CFTR gene, making possible the amazing breakthroughs that will lead in the near future to effective therapy for over 90% of people with CF. #TeamCF https://t.co/lbx1a9PTVz
A significant commitment by CFF to help support Arcturus develop inhaled RNA therapy. Still early, but this approach to therapy would benefit people with CF no matter what their mutations - something we absolutely need! #TeamCF
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The CFF Science Team is headed to Alabama this week to meet with the SRI/UAB team on their CFF-sponsored program to develop new therapies for those with Nonsense ("X") Mutations. A tough nut to crack, but over 750,000 compounds screened to date and many more on the way! #TeamCF
Infection Researchers! Spread the word that CF is the place to bring your best ideas: Awards for Infection Research Initiative https://t.co/fjIo53FxPU via @cf_foundation
Congratulations to Vertex for their submission today of the new drug application for the triple combination tezacaftor/elexacaftor/ivacaftor to the FDA. Grateful for the many members of the CF community that have participated in trials and made this application possible! #TeamCF
Did you know that at the Senate press conference last week on the importance of protecting insurance for individuals with preexisting conditions, 5 of 47 senators featured stories of people with CF? Amazing! Mary Dwight and the CFF advocacy team are getting it done! #TeamCF