MPN Research Foundation

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm

[MPN Research Foundation @MPN_RF]

Research is stronger when it includes the voices of people most affected by MPNs.

Congratulations to the 60 members of the #MPN community who completed MPN Pathways: Empowered Voices in Research and earned certification as Patient Research Advocates! 

#MPNPathways #PatientVoice

[MPN Research Foundation @MPN_RF]

Blood Cancer Awareness Month may be over, but the work continues.

Thank you to the organizations that supported MPN Research Foundation's awareness and research initiatives, including You & MPN and the MPN PROGRESSion Registry®.

Together, we're moving #MPN research forward ❤️

[MPN Research Foundation @MPN_RF]

Thank you for supporting MPN research during Blood Cancer Awareness Month.

Your support helped fund $2 million for 8 new MPN research projects.

Meet the award recipients: https://t.co/y0mTVdMMHP

#MPN #CancerResearch #ResearchFunding

[MPN Research Foundation @MPN_RF]

Blood Cancer Awareness Month ends in 48 hours, but the need for MPN research continues.

More than 300,000 people in the U.S. live with myeloproliferative neoplasms (#MPNs), yet these rare blood cancers remain underrecognized.

Support MPN research: https://t.co/k1Wj9cmi2f

[MPN Research Foundation @MPN_RF]

Congratulations to the authors and the Progression Research Network on this publication. We are proud to see this collaborative effort contribute to the growing body of research focused on MPN disease progression.

[Raajit Rampal, M.D.Ph.D. @RaajitRampal]

Why do some pts with MPNs stay stable for decades while others progress? @MPN_RF launched the MPN Progression Research Network in 2020 to address this pressing issue. We now present a blueprint for dealing with progression from these efforts. (https://t.co/qW75e4aVja).A thread🧵

[MPN Research Foundation @MPN_RF]

This #BloodCancerAwarenessMonth, we thank our global partners, patient-led groups, research collaborators, and advocacy allies working to advance MPN research and support the MPN community. 
Support MPN research: https://t.co/k1Wj9cmi2f 

#MPN #CancerResearch

[MPN Research Foundation @MPN_RF]

Saturday is the 1st anniversary of MPN PROGRESSion Registry! THANK YOU to our 700+ participants; the clinicians, researchers & partners helping spread the word; and sponsors for making this study possible. We're just getting started! https://t.co/xOwbeMGeMy

[MPN Research Foundation @MPN_RF]

4/4
What term should we explain next? #MPNEducation

[MPN Research Foundation @MPN_RF]

1/4
An MPN diagnosis brings a new vocabulary.
A: Allele burden estimates the proportion of tested genetic material carrying a mutation.

[MPN Research Foundation @MPN_RF]

3/4
C: A CBC measures blood cells.

[MPN Research Foundation @MPN_RF]

The MPN Patient Bill of Rights outlines key principles for quality care, informed decision-making, and patient advocacy. 

Save it. Share it. Help raise awareness this #BloodCancerAwarenessMonth. 

#Myelofibrosis #PolycythemiaVera #EssentialThrombocythemia

[MPN Research Foundation @MPN_RF]

4/4 
To everyone who shared a story, raised awareness or supported research this #MPNAwarenessDay: thank you. Every action helps move MPN research forward. 

Support the search for better treatments and cures -  https://t.co/gK0uLDDJ40

[MPN Research Foundation @MPN_RF]

1/4 
MPNs — including ET, PV and MF — are blood cancers in which the bone marrow produces abnormal numbers of blood cells. They typically follow a chronic course, although disease behavior and progression vary. #MPNAwarenessDay

[MPN Research Foundation @MPN_RF]

3/4 
For some eligible people with myelofibrosis, a donor stem cell transplant may offer the possibility of a cure. But it carries substantial risks and is not right for everyone. Better and more accessible treatment options are urgently needed.

[MPN Research Foundation @MPN_RF]

The FDA has approved BESREMi® (ropeginterferon alfa-2b) for adults with essential thrombocythemia (#ET), marking the first new FDA-approved treatment option for ET in nearly 30 years! 

Read more: https://t.co/XwX0Q1lyCc

[MPN Research Foundation @MPN_RF]

(4/4) 

Their projects tackle major challenges in MPN research through disease biology, therapeutic discovery, translational science, biomarkers, and artificial intelligence. 

Explore the projects and their potential patient impact: 
https://t.co/xe3uzW8ILV

[MPN Research Foundation @MPN_RF]

(1/4) 
This #MPNAwarenessDay, we’re proud to announce an investment of more than $2 million in 8 new, innovative research projects through the 2026 MPN Challenge™

[MPN Research Foundation @MPN_RF]

3/4

Congratulations to: 

Stefan Constantinescu, MD, PhD 
John Crispino, PhD 
Ricardo Fernandes, DPhil 
Angela Fleischman, MD 
Gregory Goldgof, MD, PhD 
Peng Ji, MD, PhD 
Jeanne Palmer, MD 
Daniel Royston, MBChB, BSc, DPhil