MPN Research Foundation

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm

[MPN Research Foundation @MPN_RF]

Could artificial intelligence help researchers spot MPN progression earlier? Dr. Palmer is developing trustworthy AI tools to predict risk and personalize care.

Support the research: https://t.co/gK0uLDDJ40

#MPNResearch #SparktheNextDiscovery

[MPN Research Foundation @MPN_RF]

Could scientists one day target "always-on" MPL-mutated cells while sparing normal cellular function? Ricardo Fernandes, DPhil, believes we can. 

Help spark the next discovery: https://t.co/gK0uLDDJ40

#SparkTheNextDiscovery #MPNResearch #MPNChallenge #BloodCancerResearch

[MPN Research Foundation @MPN_RF]

We are happy to announce Takeda has signed on as a new MPN PROGRESSion Registry® sponsor. Their support helps make this important, long-term, observational research possible. Our sincere thanks!  
Enroll today: https://t.co/frYXNLcGrg

[MPN Research Foundation @MPN_RF]

Join us Nov. 18 for a patient-friendly webinar to get an inside look at the research shaping the future of MPN care. 

Register to attend or get the recording link: https://t.co/QjA9VtEvFk 
#MPNResearch

[MPN Research Foundation @MPN_RF]

It's not too late to add your voice to MPN research. 

✅ Watch all 9 sessions 
✅ Complete all 9 evaluations 
✅ Earn your #MPNPathways certification 

https://t.co/NN4D7LbkaW 

#PatientVoice #MPNResearch

[MPN Research Foundation @MPN_RF]

The PGI-S asks one simple but important question: How severe does your MPN feel right now? Your answer becomes a valuable snapshot of your health experience and can help researchers better understand disease impact over time. Include your voice in future research. Enroll today.

[MPN Research Foundation @MPN_RF]

“Patients should not simply be the subjects of research; we should be meaningful partners in shaping it.”
— Pasusant W. 

Through #MPNPathways, patients and caregivers gain the knowledge and confidence to bring informed perspectives into MPN research. 

#PatientVoice #MPNResearch

[MPN Research Foundation @MPN_RF]

The recent wave of MPN news underscores a promising reality: innovation is advancing on multiple fronts at once. 

This strengthens our commitment to convene stakeholders across the research ecosystem, ensuring patients are the focus. 

#MPN #PatientCenteredResearch #Hematology

[MPN Research Foundation @MPN_RF]

We're honored to join patient advocacy leaders at the 11th #MPNHorizons Conference, hosted by the #MPNAdvocatesNetwork. 

We'll be presenting #YouAndMPN, our free patient education program. In its first year, 90% of patients reported learning new information about MPNs. 
#MPNHZ26

[MPN Research Foundation @MPN_RF]

MPN affects more than blood counts. The PHQ-9 survey helps capture the emotional side of living with MPN, providing valuable insights for research. Join the MPN PROGRESSion Registry® and help advance understanding of the patient experience. https://t.co/tI5ihp5kHM

[MPN Research Foundation @MPN_RF]

Education. Connection. Confidence. 

MPN Pathways helps patients and caregivers better understand MPN research, clinical trials, and drug development while connecting with others across the MPN community. 

#MPNPathways #MPNResearch #PatientVoice

[MPN Research Foundation @MPN_RF]

Research is stronger when it includes the voices of people most affected by MPNs.

Congratulations to the 60 members of the #MPN community who completed MPN Pathways: Empowered Voices in Research and earned certification as Patient Research Advocates! 

#MPNPathways #PatientVoice

[MPN Research Foundation @MPN_RF]

Blood Cancer Awareness Month may be over, but the work continues.

Thank you to the organizations that supported MPN Research Foundation's awareness and research initiatives, including You & MPN and the MPN PROGRESSion Registry®.

Together, we're moving #MPN research forward ❤️

[MPN Research Foundation @MPN_RF]

Thank you for supporting MPN research during Blood Cancer Awareness Month.

Your support helped fund $2 million for 8 new MPN research projects.

Meet the award recipients: https://t.co/y0mTVdMMHP

#MPN #CancerResearch #ResearchFunding

[MPN Research Foundation @MPN_RF]

Blood Cancer Awareness Month ends in 48 hours, but the need for MPN research continues.

More than 300,000 people in the U.S. live with myeloproliferative neoplasms (#MPNs), yet these rare blood cancers remain underrecognized.

Support MPN research: https://t.co/k1Wj9cmi2f

[MPN Research Foundation @MPN_RF]

Congratulations to the authors and the Progression Research Network on this publication. We are proud to see this collaborative effort contribute to the growing body of research focused on MPN disease progression.

[Raajit Rampal, M.D.Ph.D. @RaajitRampal]

Why do some pts with MPNs stay stable for decades while others progress? @MPN_RF launched the MPN Progression Research Network in 2020 to address this pressing issue. We now present a blueprint for dealing with progression from these efforts. (https://t.co/qW75e4aVja).A thread🧵

[MPN Research Foundation @MPN_RF]

This #BloodCancerAwarenessMonth, we thank our global partners, patient-led groups, research collaborators, and advocacy allies working to advance MPN research and support the MPN community. 
Support MPN research: https://t.co/k1Wj9cmi2f 

#MPN #CancerResearch

[MPN Research Foundation @MPN_RF]

Saturday is the 1st anniversary of MPN PROGRESSion Registry! THANK YOU to our 700+ participants; the clinicians, researchers & partners helping spread the word; and sponsors for making this study possible. We're just getting started! https://t.co/xOwbeMGeMy

[MPN Research Foundation @MPN_RF]

4/4
What term should we explain next? #MPNEducation

[MPN Research Foundation @MPN_RF]

1/4
An MPN diagnosis brings a new vocabulary.
A: Allele burden estimates the proportion of tested genetic material carrying a mutation.

[MPN Research Foundation @MPN_RF]

3/4
C: A CBC measures blood cells.