PV Reporter

PV Reporter provides tools for MPN research. David Wallace - Founder, Fierce PV patient & advocate. CEO of non-profit

[PV Reporter @PVReporter]

🚨 BREAKING: FDA approves Jakafi XR, a once-daily ruxolitinib tablet for MF, PV & GVHD patients. Same proven treatment, simpler schedule. Available May 8. Big win for our community.
#pvreporter #myelofibrosis #polycythemiavera
https://t.co/DdQjOUjbyC

[PV Reporter @PVReporter]

He introduced interferon for MPNs. Helped launch Gleevec. Developed the bone marrow biopsy used worldwide.

Dr. Richard T. Silver passed away April 17, 2026. Age 97.
Our community owes him so much. 🙏

🔗 https://t.co/SkkpIRNJHT
#MPNcommunity #BloodCancer #PolycythemiaVera

[PV Reporter @PVReporter]

GLP-1 drugs are being studied for possible benefit in MPN and MDS. Early research shows potential inflammation reduction and symptom relief. 🔬

https://t.co/skj1l0oPIC

#GLP1 #MPNs #pvreporter

[PV Reporter @PVReporter]

🧬New on PV Reporter: Interferon Treatment for MPNs

Learn how interferon works, benefits for PV, ET, and MF patients, side effects, and key questions to ask your doctor.

🔗 Learn more: https://t.co/bfaFJg4gvD

[PV Reporter @PVReporter]

🩸 Red Blood Cells Gone Wild!

Polycythemia Vera (PV) is a rare blood cancer where the bone marrow makes too many red blood cells, platelets, and sometimes white blood cells. Awareness matters.

👉 https://t.co/P8CjmE8dUd

#BloodCancerAwarenessMonth #bloodcancerawareness

[PV Reporter @PVReporter]

@Silentgem2 That's great to hear, thanks for sharing!

[PV Reporter @PVReporter]

🚿 MPN-related itching after showers?

Beta-alanine may offer relief for aquagenic pruritus.
Read how it works & what patients report:
https://t.co/Xopxm1fOvL

#MPN #PolycythemiaVera #ItchingRelief #pvreporter #bloodcancerawareness

[PV Reporter @PVReporter]

🎗️ September is Blood Cancer Awareness Month.
MPNs (PV, ET, MF) affect thousands of patients. Raise awareness & share important resources: 👉 https://t.co/3XZySVhbCr
#BloodCancerAwarenessMonth #MPN

[PV Reporter @PVReporter]

Brain fog in Polycythemia Vera is real.

It’s not just forgetfulness—it's driven by inflammation, hyperviscosity & iron deficiency.

🧠 Read how it affects daily life + coping tips:
🔗 https://t.co/6BMXgBqRO2
#MPNs #PolycythemiaVera #BrainFog

[PV Reporter @PVReporter]

🚨 BREAKTHROUGH for CALR-mutant #ET patients!
Incyte’s new therapy INCA033989 shows 86% response rate in early trial, with most reaching full platelet normalization.
🔗 Read: https://t.co/liNkl7gGI1

#MPNsm #BloodCancer #Clinicaltrial

[PV Reporter @PVReporter]

🩸 Tired of frequent blood draws for polycythemia vera?

New breakthrough treatment reduces phlebotomies by 77%!

Learn how this could change your PV treatment options → https://t.co/mfvOmoHESX

#Polycythemiavera #ClinicalTrial
#pvreporter

[PV Reporter @PVReporter]

@IChapiro77703 Long story, Pegasys/Jakafi combo for 5 yrs, complete molecular and hema remission. 5 yrs maint dose of Pegasys. Combo is the strongest treatment for PV IMO.

[PV Reporter @PVReporter]

16 years since my PV diagnosis. It’s been a tough road, full of setbacks & hard choices—but I’m grateful to be in remission. To everyone facing an MPN or rare blood cancer: keep pushing forward. You’re not alone. #MPN #BloodCancerAwareness

[PV Reporter @PVReporter]

🔬 New research connects gut health to Polycythemia Vera symptoms!

Could your microbiome be affecting your PV? Learn how diet changes might help manage your condition in our latest article. #MPNsm #PolycythemiaVera #microbiome #pvreporter

https://t.co/IoIcEtreEB

[PV Reporter @PVReporter]

4/ 📥 Get the guide here: https://t.co/1Hpc8wdYKA

[PV Reporter @PVReporter]

1/ 🎗 Finding the right MPN specialist is critical for your care—but many patients don’t know where to start. A regular hematologist isn’t always enough. 🩸 (🧵👇)

[PV Reporter @PVReporter]

3/ Inside, you’ll find ✅ the U.S.-based MPN Expert List, ✅ key questions to ask, ✅ tips for caregivers & more!

[PV Reporter @PVReporter]

🔎 MPN patients & doctors don’t always see eye to eye on symptoms. A new study reveals a major disconnect that could impact care. Are patients being heard?

Read more ➡ https://t.co/2P0JzSIlEh

#MPNSymptoms #PatientCare #MPNResearch

[PV Reporter @PVReporter]

🔥 Good news for the MPN community!

Dr. Golam Mohi at UVA just received a $2.4M NIH grant to study MPN progression & explore new #treatments. 🔬

Read more: https://t.co/lmtgXnqnuV

#bloodcancer #Research
#myelofibrosis #clinicaltrials