PV Reporter

PV Reporter provides tools for MPN research. David Wallace - Founder, Fierce PV patient & advocate. CEO of non-profit

[PV Reporter @PVReporter]

🗞️ Karyopharm, maker of Selinexor, filed Chapter 11 today and plans to merge with Ayrmid.

It says its MF program continues, and the deal should close Q1 2027. FDA acceptance of selinexor plus rux for MF is still pending. - https://t.co/cowaYVhW14

#MPN #Myelofibrosis

[PV Reporter @PVReporter]

@Silentgem2 Yes indeed!

[PV Reporter @PVReporter]

🚨 BIG MPN NEWS!

Merck KGaA agrees to acquire Silence Therapeutics for $1.3 BILLION.

At the center: divesiran, an investigational PV therapy with promising Phase 2 results.

Another major investment in the future of MPN treatment!

#PolycythemiaVera #BloodCancer

[PV Reporter @PVReporter]

🧊 MPNs are more than blood counts.

Beneath the surface: fatigue, brain fog, itching, bone pain, night sweats, headaches & emotional challenges.

Living with PV, ET or MF can mean struggles others never see.

What's your biggest invisible symptom?

https://t.co/GYWMrEVdZh

[PV Reporter @PVReporter]

I live with PV. I know the hematocrit number matters, and the person behind it does, too. 🎯

Below 45% is the established target. Symptoms still deserve attention.

Patients, caregivers, physicians, and researchers: let’s talk.

https://t.co/PKD9xhBIJx

[PV Reporter @PVReporter]

BESREMi is now FDA approved for adults with #essentialthrombocythemia (ET).

What should patients know? My PV Reporter article covers trial results, dosing, safety, and questions for your hematologist.

https://t.co/fDt7D77Y5J

#bloodcancerawarenessmonth #BESREMi #pvreporter

[PV Reporter @PVReporter]

September is #BloodCancerAwarenessMonth. Ahead of #MPNAwarenessDay tomorrow, check out our free Guide to Polycythemia Vera: https://t.co/qzZTYrv4Tu

Thank you to our generous supporters, @PharmaEssentia, @Incyte & @TakedaPharma, for making this resource possible.

[PV Reporter @PVReporter]

Honored that Hemostasis Today featured my PV Reporter article on the FDA approval of MIMRYLO™ (rusfertide) for adults with PV.

Grateful to see patient-focused MPN reporting reach a wider audience. 🙏

https://t.co/kO2KUz4jN9

#PolycythemiaVera #MPN #BloodCancerAwarenessMonth

[PV Reporter @PVReporter]

Red blood cells “gone wild” may be playful, but polycythemia vera is serious. PV causes the bone marrow to make too many blood cells, raising the risk of dangerous clots and stroke.

Learn more and please share: https://t.co/CScLysPa6x

#PVera #BloodCancerAwarenessMonth

[PV Reporter @PVReporter]

A new chapter in #PolycythemiaVera treatment begins.

The FDA has approved MIMRYLO™ (rusfertide), the first hepcidin mimetic for erythrocytosis in adults with PV.

What patients should know:
https://t.co/FNUp2WqdBs
#BloodCancerAwarenessMonth #Mimrylo

[PV Reporter @PVReporter]

@OriSilver AGI

[PV Reporter @PVReporter]

BESREMi pen update: Available to order August 7. Thanks to PharmaEssentia for the demo kit. The pen is similar to a GLP-1 pen and may simplify injections for patients who need it. Ask your physician for details.

#BESREMi #polycythemiavera ##bloodcancerawareness

[PV Reporter @PVReporter]

🚨 BREAKING: FDA approves Jakafi XR, a once-daily ruxolitinib tablet for MF, PV & GVHD patients. Same proven treatment, simpler schedule. Available May 8. Big win for our community.
#pvreporter #myelofibrosis #polycythemiavera
https://t.co/DdQjOUjbyC

[PV Reporter @PVReporter]

He introduced interferon for MPNs. Helped launch Gleevec. Developed the bone marrow biopsy used worldwide.

Dr. Richard T. Silver passed away April 17, 2026. Age 97.
Our community owes him so much. 🙏

🔗 https://t.co/SkkpIRNJHT
#MPNcommunity #BloodCancer #PolycythemiaVera

[PV Reporter @PVReporter]

GLP-1 drugs are being studied for possible benefit in MPN and MDS. Early research shows potential inflammation reduction and symptom relief. 🔬

https://t.co/skj1l0oPIC

#GLP1 #MPNs #pvreporter

[PV Reporter @PVReporter]

🧬New on PV Reporter: Interferon Treatment for MPNs

Learn how interferon works, benefits for PV, ET, and MF patients, side effects, and key questions to ask your doctor.

🔗 Learn more: https://t.co/bfaFJg4gvD

[PV Reporter @PVReporter]

🩸 Red Blood Cells Gone Wild!

Polycythemia Vera (PV) is a rare blood cancer where the bone marrow makes too many red blood cells, platelets, and sometimes white blood cells. Awareness matters.

👉 https://t.co/P8CjmE8dUd

#BloodCancerAwarenessMonth #bloodcancerawareness

[PV Reporter @PVReporter]

@Silentgem2 That's great to hear, thanks for sharing!

[PV Reporter @PVReporter]

🚿 MPN-related itching after showers?

Beta-alanine may offer relief for aquagenic pruritus.
Read how it works & what patients report:
https://t.co/Xopxm1fOvL

#MPN #PolycythemiaVera #ItchingRelief #pvreporter #bloodcancerawareness

[PV Reporter @PVReporter]

🎗️ September is Blood Cancer Awareness Month.
MPNs (PV, ET, MF) affect thousands of patients. Raise awareness & share important resources: 👉 https://t.co/3XZySVhbCr
#BloodCancerAwarenessMonth #MPN