MPS SuperHero

The MPS SuperHero Foundation is a parent-led 501(c)(3) nonprofit organization focused on raising awareness to fund a cure for Hunter Syndrome (MPS II).

[MPS SuperHero @mpssuperhero]

Kickin’ for a Cure is back and will be hosted by City of Hialeah Gardens This year!!! Get your team together and register today to see if you have what it takes to beat last years champions! #mpsSuperHero #kickball #HialeahGardens

[Making People Smile @Making_PplSmile]

Hello. My name is Mia Avellan. I am the founder of Making People Smile. A little bit about my Foundation is I work to help save kids lives. I help advocate for rare and non-rare diseases or illness. My first partnership is with the MPS SuperHero Foundation. Please help me grow💜

[CheckRare @CheckRare]

Barbara Burton, MD at the Ann & Robert H. Lurie Children's Hospital of Chicago highlights MPS research. @MPSSociety @mpssuperhero National MPS Society MPS Society
@Irishmpssociety @Sanfilippo_RM MPS SuperHero Foundation The Irish MPS Society
https://t.co/KTxUV9PZTx

[MPS SuperHero @mpssuperhero]

Denali Therapeutics have 2 papers that were recently published in Science Translational Medicine. These two papers highlight our advances in tackling blood brain barrier delivery technology and lysosomal storage… https://t.co/2YmBR9Qg1i

[MPS SuperHero @mpssuperhero]

Infusion days are always better with smiles from the wonderful staff members! We love meeting students who are passionate and want to learn about MPS. 💜

#mpsSuperHero #InfusionDays #joedimaggio #Hospital #Nurses… https://t.co/Gtdm1nTb91

[MPS SuperHero @mpssuperhero]

On the last day of February each year we advocate for 400 million people around the world who fight some type of rare disease daily. Help us raise awareness and show you care about rare. Post a picture and tag us or… https://t.co/MrAQ6p8kkW

[MPS SuperHero @mpssuperhero]

Attn: MPS II Families,
Have you participated in the non-treatment, research interview? If not, and would like to do so, please reach out to Evidera and help make a difference in our community for a better future! https://t.co/8EE2daorbZ

[MPS SuperHero @mpssuperhero]

Happy New Year to all from our MPS Super Hero Family. https://t.co/FbW5O3s8KV

[MPS SuperHero @mpssuperhero]

Happy Holidays from our MPS Family to yours. https://t.co/wG8uZ0reZd

[MPS SuperHero @mpssuperhero]

1)Share on social media that you'll be participating in #GivingTuesday to #EndHunterSyndrome
2) Set up a Fundraiser "Donate Button" for MPS SUPERHERO on Facebook. (Instructions below)
3) Personally reach out to… https://t.co/mpJ0UYIyfO

[MPS SuperHero @mpssuperhero]

We are so thankful for all of you in our lives. Thank you for being a MPS SuperHero. 🦸🏻‍♀️💜🦸🏻‍♂️🦸🏼‍♂️🦸🏼‍♀️🦸🏽‍♀️🦸🏽‍♂️ #mpsSuperHero https://t.co/YnwTy1thMl

[MPS SuperHero @mpssuperhero]

Thank you Nicky Jam for helping me save my Son’s Life! Just by putting on the superband makes you a true SuperHero! - from Monica, Kalel’s mom
#mpsSuperHero #NickyJam #Dimelopapi #HelpMeSaveMySonsLife #LIVMiami #LIV… https://t.co/COIbh7H56q

[MPS SuperHero @mpssuperhero]

It is because of caring individuals like the team at clowns to the rescue that we are so close to Funding a Cure for the children battling MPSII. You truly are SuperHeroes and we are so grateful for your support. If… https://t.co/btHuKTXJYk

[MPS SuperHero @mpssuperhero]

Our 3rd annual Kickin’ for a Cure Kickball event photos are now available! Make sure to check them out on Facebook page. Also, Don’t forget to follow us, like our page, tag yourselves, and share with all your friends… https://t.co/dc2UjYPlVL

[MPS SuperHero @mpssuperhero]

Thank u again to all who came out & enjoyed our 3rd annual Kickin’ for a Cure Kickball. Photos are coming soon to our FB page near you. Don’t forget to like our page. Thank U to our amazing SuperHero photographer Silvio Padilla for capturing all the special moments of the event

[MPS SuperHero @mpssuperhero]

It is our honor to present our 3rd Annual Kickin’ for a Cure Kickball Tournament Champions, @MLOptimistClub. Thank you to the cityofhialeahgardens for hosting this year at the beautiful Westland Gardens Park! Thank… https://t.co/cmGPyPkkVQ

[MPS SuperHero @mpssuperhero]

Our 3rd Annual Kickin’ for a Cure Kickball Tournament begins tomorrow! Don’t miss out on exciting fun and a chance to go home with the Gold, sponsored by @GoldFinancial! Thank you @goldfinancial for your undying efforts to support our cause in eliminating mps!

[MPS SuperHero @mpssuperhero]

Join us for our 3rd Annual #KickinForACure kickball tournament on October 12th at 2:00pm at Westland Gardens Park.
13501 NW 107 Ave
Hialeah, FL 33018

#mpsSuperHero #Kickball #kickballtournament #nonprofit #fun… https://t.co/GSAMamoLs0

[Miami-Dade Fire Rescue @MiamiDadeFire]

#MDFR was recognized by @mpssuperhero for helping to raise awareness and helping find a cure for kids living with MPS syndrome. We’re honored by this recognition and proud to have been able to help the cause.

[MPS SuperHero @mpssuperhero]

When dealing with a child who has a complex disease and sees so many specialists, it can become difficult to keep track of all of the child’s medical records. We are honored to have partnered up with Backpack health… https://t.co/xxN5vd7wk3

[MPS SuperHero @mpssuperhero]

When dealing with a child who has a complex disease and sees so many specialists, it can become difficult to keep track of all of the child’s medical records. We are honored to have partnered up with Backpack health… https://t.co/bxOD6V0IdN