Clinical trial recruitment and retention are connected yet methodological research has addressed these separately. Dual assessment should be the new standard to avoid improving one at the expense of the other, say Anna Kearney et al. @ORRCA_rct@msakearney@MRCNIHRTMRP@SCTorg
A subset of outcomes exists relevant for research and routine care in COS developed for the same condition but different settings. @COMETinitiative@prw_paula@JClinEpi https://t.co/4Ey4dea9qv
Great to be presenting about the similarities and differences between COS developed for research and COS developed for routine care #hsruk2024@COMETinitiative@arc_nwc
How do you engage with posters? Can we make them more engaging and accessible? This year my poster is interactive and has a voice recording of the poster walk through. Come and have a go and tell me what you think using the poster QR code #ICTMC2022#cometinitiative
Our paper “Guidance to inform research recruitment processes for studies involving critically ill patients” is now published
In our 2nd paper, @kerry_woolfall et al outline our good practice guidance on recruitment of critically ill patients to research
TRECA main results paper now in BMC Medicine: https://t.co/6cgaD4vqds . Using multimedia instead of printed sheets increased trial recruitment in children & teens. Pooled data, 3 SWATs: OR 1.54 (1.05, 2.28) p=0.03. Overall, mutlimedia recruitment rate 69%, printed sheet rate 64%.
@msakearney@prw_paula@arc_nwc 👏to Anna for leading this impressive piece of work! Key finding - room for improvement in patient participation in the studies found (all now in the COMET database). Looking forward to Anna’s work on the question of a single COS 👍 @prw_paula
Our review of core outcome sets for routine care is now online. This is the first step in determining whether a single COS is appropriate for both research and routine clinical care settings https://t.co/ZiWPN73c3x @COMETinitiative@prw_paula@arc_nwc
Someone you know have lived experience of dementia or is a family carer? @scifall is looking for people to co develop outcome measures. Deadline extended for a few weeks so still time to circulate /register interest. @hetbag@drakesyard@eczemasupport
Science for All is working with the Uni of Queensland to involve people affected by dementia in co-developing core outcomes for care.
We're paying people for their time to be involved in this project. Read more and register your interest here:
https://t.co/a3VvaTKFWZ
#Dementia
@KatiePaddockPhD@MelissaSurgey I did this once. Andy looked at me horrified when he saw it - apparently there are only so many bricks you should put in a car at once if you don’t want to wreck the suspension. Who knew! 🤣 Maybe do a few trips….??
Clear reporting of #missingdata is v. important. Imputed data is a particular challenge- Lots of effort to know which data in the analysis was available vs imputed. Participant status often reported instead. @JamillaHussain1 @tmorris_mrc https://t.co/OwkC2gRyUX
Understanding which data is observed and which is imputed in RCT publications can be very tricky. Increased transparency in reporting is needed @Carrol_Gamble@janetalaneBris@BlazebyJ@CONSORTing https://t.co/OwkC2gRyUX
@AccessCR@eczemasupport Hi, https://t.co/e9T69kh5EO is an online searchable database of recruitment and retention research. Free to use. Contact [email protected] if you have more questions once you have had a look.
We are looking for patient and public advisors working in clinical trials to help us review and improve @ORRCArct. Get in contact if you are interested.