Leonie’s haemoglobin levels have now dramatically dropped and her blood is a light colour. She now needs another blood transfusion. When will this ever end for her!!! 💔😭 #TeamLeonie#FcukCP#FcukSepsis#FcukEColi
Leonie had her 3rd sepsis washout; this one took longer as 11 litres were used to cleanse her. They have closed the surgical wound again. You can't keep it open that long due to more infections! She has 3 drains attached to her now. 2 blood/flush drains and one infection drain. I dare not show too much graphic content as it might offend or upset some but it is the reality of what my daughter has had to endure so far.
We will now sit and wait for a few more weeks, taking bloods every day to check the white cell count and keeping antibiotics, pain relief, PN & fluids pumping through her body. If this doesn't work & Leonie’s body starts shutting down again, the next drastic step is opening Leonie up again then cleaning the spinal metalwork. We are all hopeful this will work. Brain scan on Friday.
#TeamLeonie 💔
Please read Leonie’s constant fight; https://t.co/i7z8aRQy6h
@chillibean2018 Sweet sweet Leonie, rest you did a marvelous job today I am so very proud of you. I hope you can rest now mum, there is nothing worse than the agonizing wait. Keep talking to her and tell her she is a super hero and she should be proud. Sending Love and Hugs Ree
It doesn’t get any easier Leonie going back into theatre. She is so drained; I didn’t get my hand held this time. The anaesthetic went in the PICC line & the mask went on; she didn’t even make any eye contact with me. I gave a big kiss and that's me, having to leave her again with the theatre team. I have never seen her like this before; it’s like she’s there somewhere but isn’t. #TeamLeonie 💔
@chillibean2018 Lord please steady the hands of Leonie's surgical team.We ask you to please keep Leonie's strength up today and please we ask you to remove this infection once and for all. Lastly we ask that you are with Leonie's mom & family as they wait that agonizing wait. In Jesus name Amen
@chillibean2018@StephenKing@TheHorrorMaster Hi Vicky, I pray Leonie had a peaceful night. I think she has a procedure today, I will be praying for her. Question for you can I send a card to the hospital I looked it up and I can put attention Leonie I remember you last name from sending a card once before ?
Hugs Ree❤❤
Many know on X/Twitter that Halloween is Leonie’s favourite time of the year. Sadly, this year we won't be decorating our home/outside for her & other children.
So, JD & I have brought Halloween…to Leonie. 😪 👻 🧙 🎃 #TeamLeonie 💔 @Step@StephenKing@TheHorrorMaster #halloween #Sepsis #Exhaustedmum #Fighter #FcukYouCP #Ecoli #neuromuscular #scoliosis #Surgery
My little fighter’s charity donation link;https://t.co/i7z8aRQy6h
More bloods were taken last night; we found out today that Leonie’s white cell count has gone up and she has gone downhill again. Another change & now going back onto the vancomycin antibiotic for the sepsis. Her vac ulta drain container filled up quicker than the prior; we are now on the 7th 500ml container which is equivalent to over 5 pints of this vile infection. They are trying to get Leonie in today for a brain scan, as she's still not herself. This time she will have to be sedated as she struggles in the MRI scanner after 20 minutes; they need a specialist anaesthetist to administer the sedative. She has started vomiting again, and nothing is staying in her stomach and is coming out one way or another. Another setback… and another sepsis clean-out theatre trip tomorrow. I really do not know what to say anymore! Or how she manages everything; it's beyond sad. #TeamLeonie 💔
https://t.co/i7z8aRQy6h
@chillibean2018 I keep losing my messages to you hmmm. Your so sweet, I have been told I am unforgettable LOL! Oh how sad, I am so sorry Vicky. Please tell me you are taking care of yourself the best you can rest & hydration. I am sending you such a big hug.
@chillibean2018 Oh I am crying just thinking about what you are going through again. I was not sure if you would remember me. I would love to send Leonie a card. I pray with my holy water to give you both strength. Pls give her a kiss for me I am doing well TY getting old sucks but managing
@chillibean2018 Hi Vic, My heart is broken, watching Leonie go though so much. I don't know how to DM you as it changed but I wanted to reach out and let you know I am praying for Leonie and you.
Sending Love Ree🦋🦋
I am not on X much due to all the negative. But I do see updates❤❤