Roberto Muggli

RE/MAX broker who loves to fish. Living with ALS since 2017.

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Honoring people with #ALS
May 11 - 13 Flags on the National Mall in DC
for #ALSAwarenessMonth

Thank you @iamalsorg for this powerful event!

@POTUS @RepAnnaEshoo @RepSchakowsky @ChrisCoons @SenJohnThune @SenSanders @SenatorWicker @RepBradWenstrup @DorisMatsui @RepAndyHarrisMD

[Roberto Muggli @MuggliRoberto]

@MinoSean 100 percent agree. I know what it did for me after each of the nine injections. Almost 6 years with ALS and still breathing on my own.

[Roberto Muggli @MuggliRoberto]

@SarahNauser So true. ALS is not for the weak. You have to be a warrior to get through this difficult disease.

[Roberto Muggli @MuggliRoberto]

@MinoSean @alsassociation @slk1 @JinsyMd @alsagoldenwest @kemenkhaus This is the reason I tell anyone who wants to donate to an ALS organization never to donate money to The ALS Association . I know what NurOwn did for me after each of the 9 injections.

[Live Like Lou @LiveLikeLou4]

GIVEAWAY 🎉

Celebrate our new brand and enter to win a Live Like Lou branded baseball!

To enter, retweet and follow us!

Entries must be completed by 1/13 at midnight ET.

[BrainStorm @BrainstormCell]

Their commitment made our current progress possible and continue to inspire us as we prepare for the considerable work ahead. https://t.co/V3Xy2Bb3sF

[BrainStorm @BrainstormCell]

A special thanks is reserved for all the clinical trial participants and their loved ones. Their sacrifices and contributions are advancing science and giving hope for a more promising future.

[Roberto Muggli @MuggliRoberto]

Hey @Delta, Please talk with #ATLairport administration. Your ATL International Concourse E does not have a family or wheelchair accessible bathroom. The stall in the men’s room is not big enough for my wheelchair. I found this spot with ample space instead.

[BrainStorm @BrainstormCell]

#ALS is a rare disease that can strike anyone and waits for no one. On #RareDiseaseDay and every day we stand with those fighting #ALS.

[C Lebovits @Cylebo]

Dr. Yossef Levi VP for CMC @BrainstormCell at a company seminary today discussing escalation and automizing the manufacturing process.

[No More Excuses ALS Watchdogs! @als_now]

Nothing magnanimous to say except 2022 must be the year *multiple* new drugs finally reach #ALS bodies. If not, #ALS will waste its best chance to transform- maybe for a decade. Can #ALS unify, and make access to ANY drug that is ready its #1 goal for 2022? #demandresults #ENDALS

[axeALSFoundation @stevens_nation]

More EAP doses means @BrainstormCell and @US_FDA are working collaboratively & listening to ALS patients/advocates. More EAP doses means commercial manufacturing is approved. More EAP doses means more data that will hopefully support a path forward for approval for all patients.

[Smithstrongmom @Smithstrongmom1]

There is so much gratitude to @BrainstormCell & @US_FDA for #Nurowneap patients receiving more doses! Working together and listening so that 30,000 ALS patients will soon have this same opportunity. Thank you~

[Roberto Muggli @MuggliRoberto]

@US_FDA, @BrainstormCell, & @Cylebo Thank you for working together on behalf of people with ALS. The biomarker data shows #NurOwn works.
https://t.co/DPo5Zrd5ig

[C Lebovits @Cylebo]

#NurOwn proceeding in the right direction. More biomarker data results shared. More NurOwn provided to patients from new @CatalentPharma site. More dialogue with the #FDA for the path forward. #ENDALS

https://t.co/dv8eSg4K4q

[Roberto Muggli @MuggliRoberto]

@jeff_cranmer @JoeBiden @RepAnnaEshoo @bsw5020 2022 needs to be the year that all ALS patients have access to #NurOwn.

[Roberto Muggli @MuggliRoberto]

@jeff_cranmer @JoeBiden @RepAnnaEshoo @bsw5020 I have received 3 injections of #NurOwn in 2019 and 3 injections in 2021. I have been living with ALS for 4 years and 7 months. I still breathe on my own, eat without a feeding tube, and my legs can still support my weight for transfers. #LivingProof #NurOwnWorks
#ChristmasGift

[All Wheels Up ♿✈ @allwheelsup]

“It just doesn’t make any sense to me — why there’s funding for space travel, but there can’t be funding to make an accessible spot on an airplane,” https://t.co/uled47qAB3

[SportsCenter @SportsCenter]

When Steve Gleason was diagnosed with ALS in 2011, he set out to make video journals for his son in case he wasn’t around.

His son, Rivers, tells his dad how this has inspired him to be resilient.

[Roberto Muggli @MuggliRoberto]

@alsassociation Are you pushing them to approve Nurown? I have had 5 injections of #Nurown and I know it works. @Nurown, @iamalsorg , @bsw5020 ,