adam lawrence

Noise/Acoustics Consultant, Hereditary Spastic Paraplegia. Cambridge - Salford - Epsom - Bristol. Atkins, IOA, Chair UK HSP group.

[UK HSP Support Group @UKHSPGroup]

March News Update
There is a news update on our website with information about a new newsletter, upcoming group meetings, a new book about lving well with HSP, and more!
https://t.co/KDJL8sxaSC
#HSP #HereditarySpasticParaplegia

[UK HSP Support Group @UKHSPGroup]

There are two HSP related things for Rare Disease Day - a global virtual meeting hosted by @SpasticWorld and streaming of a Broadway show about HSP - see our website for more details: https://t.co/1GDhzYXQlM #RareDisease #HSP #HereditarySpasticParaplegia

[UK HSP Support Group @UKHSPGroup]

Wishing all our members, supporters, friends, family and professionals happiness in this festive period!

We encourage everyone to spend time however is best for them. If you are having a tough time this year, support is available - see our website:
https://t.co/yck7NekAPG

[adam lawrence @munkee74]

Final blog post of the year - review of 2025: https://t.co/67wP1Zjl0d
#HSP #RareDisease #HereditarySpasticParaplegia

[adam lawrence @munkee74]

More assorted blog posts for December:
Muscle update: https://t.co/yNrN3TNOUS
Fatigue update: https://t.co/e4kTJJW5RW
Bladder update: https://t.co/ONF2vhVunY
#HSP #RareDisease #HereditarySpasticParaplegia

[adam lawrence @munkee74]

Assorted blog updates for December -
* New shoes and ferrules: https://t.co/CL6xF1xg6c
* Bladder ultrasound results: https://t.co/tv8uNkAqvq
* Visit from Occupational Therapist: https://t.co/5AGaYTd4IW
#HSP #RareDisease #HereditarySpasticParaplegia

[UK HSP Support Group @UKHSPGroup]

Today is International Day of Persons With Disabilities.

We support people with Hereditary Spastic Paraplegia (HSP), a rare progressive neurological condition.

As things with HSP progress, many reach a point where they call themselves disabled. Accepting this can be difficult.

[adam lawrence @munkee74]

More details about how you can take part in the day are on our website.
https://t.co/qgqgZ8iMOz
Join in a worldwide Zoom call, or share your pictures.
#HSPandPLS #HSPPLSWorldAwarenessDay #ChampionCures #MedicalResearch

[UK HSP Support Group @UKHSPGroup]

Help us mark the first HSP & PLS World Day. Send your photos to share on October 17th. Photo can be you and/or others making the gesture, just the gesture, just you. We can help. Please like & share these pics!
#HSPandPLS #HSPPLSWorldAwarenessDay #ChampionCures #MedicalResearch

[UK HSP Support Group @UKHSPGroup]

HSP and PLS groups unite – raising awareness, building community, seeking a cure for Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS).

Together we are Stronger. Together we speak louder.

Please:
✅ Share our posts
✅ Tell your story
✅ Use #HSPandPLS

[UK HSP Support Group @UKHSPGroup]

October 17th is world HSP day. You can help us raise awareness about HSP and PLS. Have a look at our website for more information. More to follow in the next few days.
https://t.co/qvPNb6GoiU

[UK HSP Support Group @UKHSPGroup]

We have our first Scotland meeting coming up on Sat October 25th, in Glasgow. There are details on our website:
https://t.co/hMFEvQd9L4

[UK HSP Support Group @UKHSPGroup]

Final day of voting - please get your votes in

[UK HSP Support Group @UKHSPGroup]

We're into the last couple of days of voting for our AGM in Birmingham on 27th July. We have some capacity at the venue. Members, please let us know! Further details in your e-mails or here: https://t.co/DcNGDwtTcr
Voting and attendance forms will close on Saturday 19th July

[adam lawrence @munkee74]

New blog post - HSP Diagnosis and Treatment, presentation to UK HSP Support Group in October.
https://t.co/pG3NtTFrZa
#HSP #RareDisease #HereditarySpasticParaplegia

[UK HSP Support Group @UKHSPGroup]

Another video on our YouTube channel - from 13th October. Estelle Marshall talks about diagnosis and treatment of HSP - https://t.co/XXpYs8gqTg #HSP #HereditarySpasticParaplegia #RareDisease

[UK HSP Support Group @UKHSPGroup]

The group has a couple of presentations coming up on Zoom. These will be on Sunday 13th October. More details available in the next day or two.

[Stickman Communications ltd @stickmancrips]

Ok, so sales have been ridiculously low for the past few weeks, with social media throttling our reach and fatigue kicking my butt.
So I'm going to practice what I preach and ask for help. Can you give us a boost to help us stay afloat by: placing an order, sharing our posts, or

[adam lawrence @munkee74]

Another new blog post - this one gives links to two separate podcasts talking about HSP, which you may like to listen to.
All through the excellent work by EuroHSP. #HSP #RareDisease #HereditarySpasticParaplegia
https://t.co/bWJxNCesKJ

[UK HSP Support Group @UKHSPGroup]

If you are researching therapies for #HSP, the 2025 #EuroHSP prize is now seeking entries.
More details: https://t.co/TzoO2lEJcK
#HereditarySpasticParaplegia #RareDisease