mySMAteam

mySMAteam is the free social network for people living with #SpinalMuscularAtrophy #SMA. Join NOW 👉

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A research opportunity is available for adults and children living with #SMA. Find out if you or someone you care about may qualify to participate.
mySMAteam has partnered with a pharmaceutical company to notify you of this research study:https://t.co/0dzaInupFF

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Treatment can benefit adults with spinal muscular atrophy (SMA) by improving quality of life and addressing complications associated with aging. Learn more about several available treatment options:https://t.co/H9SIELE1Ap

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Measuring motor function — how well a child is able to move and control their muscles — is also a vital aspect of diagnosing and treating pediatric SMA. Learn about the CHOP INTEND Motor Test: https://t.co/V7exusuy2Q

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After learning of a child's #SMA diagnosis, it’s normal for parents to feel overwhelmed by the process of finding providers and researching new treatments. Check out this resource to get help with caring for a newly diagnosed child: https://t.co/umAPgUn86Q

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Before appealing an insurance claim denial, it’s important to understand the types of denials you might face, where to send your appeal, and what should be included in it. Learn more: https://t.co/83m93NSfjM

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SMA is one of the most common genetic disorders to be diagnosed among infants and children, but just how common is the condition? Learn more: https://t.co/3iUcCadNtu

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Upright standing devices can help maintain bone health by assisting people with SMA to bear weight. Learn more about standers for people with SMA: https://t.co/R0KBWOvebV

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Different types of respiratory equipment can help develop your lungs, clear secretions from your airway, and ensure enough oxygen is getting into your blood. Read more: https://t.co/FlNprYPTBz

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A research opportunity is available for adults and children living with #SMA. Find out if you or someone you care about may qualify to participate.

mySMAteam has partnered with a pharmaceutical company to notify you of this research study: https://t.co/AxQXUs6alX

[mySMAteam @mySMAteam]

Scoliosis can occur in infants or children with SMA, commonly as a result of muscle weakness. Read more: https://t.co/KhWv8SAV5b

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Sacroiliac joint dysfunction (SIJD) is a musculoskeletal disorder and a common cause of lower back pain. Read about its relationship with SMA: https://t.co/G0XjbisQ3W

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"Late-onset" or "adult-onset" affects about 35% of people with SMA. Learn about the symptoms, treatment, and prognosis: https://t.co/makPkcrQGw

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You might know how SMA affects the muscular system, but what about the systems beyond muscle wasting? Read more: https://t.co/uLP7Fr0IYN

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How much do you know about gene splicing for SMA treatment? Learn here: https://t.co/UWhrAQNEWP

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Check out our compilation of facts and stats you should know about SMA: https://t.co/wBNZlYxpj9

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Understanding the pathophysiology of SMA can help you understand why there are different types of SMA and how they might best be treated:
https://t.co/EZlzldt8hL

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SMA fatigue can be both in the mind and the body., but the two forms of fatigue are not always related and seem to stem from different causes. Learn more: https://t.co/gCU4AyRr3U

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Kugelberg-Welander disease is one of five main types of SMA, characterized by muscle weakness in the legs and difficulty walking, running, and using stairs. Learn more: https://t.co/97gqqofsky

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SMA symptoms like muscle weakness can make independent driving difficult. Learn about the adaptive equipment available to make driving safer and more accessible for those with SMA: https://t.co/3Na9BUOSSo

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Did you know that approximately 20% of people diagnosed with SMA have SMA type 2, also called intermediate SMA or Dubowitz disease? Learn more: https://t.co/xYPkGNl7MZ