People are more willing to share genetic data for research when they understand exactly how it'll be used and know they can change their mind.
Trust isn't the soft part of genomic research, it determines whether the data exists at all.
Visit: https://t.co/kwPLKzMYl2
Most consent in genomic research is still effectively static: a participant signs once.
We're building that infrastructure: consent participants can update, or revoke as their circumstances and the research evolve, with record biobanks can rely on.
Visit: https://t.co/kwPLKzNwaA
We’re at the Abu Dhabi Future Health Summit this week (20–22 Oct).
Genomics. AI health. Precision medicine. Consent infrastructure.
All the conversations that matter, in one room.
If you’re here and working on the future of health data, find us.
Unlike a password, you can't reset your DNA if it's misused. Unlike a credit card, there's no fraud protection.
That one fact is why genomic data needs different rules than the rest of your data.
Learn more: https://t.co/kwPLKzNwaA
Unlike a password, you can't change your DNA if it's misused, and unlike a credit card, there's no fraud protection on it.
This is the gap MyDNABank exists to close. Founding Members list is open if you want in early.
Visit our website to learn more: https://t.co/kwPLKzMYl2
You got your results. Your DNA data didn't disappear, it went somewhere, and most people never find out where.
Most platforms retain your raw genetic file even after you delete your account, the account is gone, the data often isn't.
There are 3 things that make genomic data different from all other personal data:
1. You cannot change it if it's misused 2. It reveals information about your family not just you 3. Its future uses are unknown
This is why consent infrastructure matters and we are building it
30 million+ people have taken a consumer DNA test. Most have no idea what the terms and conditions actually let the company do with that data afterward. We're building MyDNABank so you do. Founding Members list is open: https://t.co/ZYMWdhY715
MyDNABank is transforming how DNA is stored, protected, and utilized. Join our mailing list to be among the first to access our latest solutions, news, and insider updates: https://t.co/kwPLKzNwaA