Natanya Rose

they/them | Licensed Cosmetologist | Wear a mask | Tik Tok 12k+ | Disability and chronic illness awareness |

[Natanya Rose @natanyarosee]

Duos back working

[Natanya Rose @natanyarosee]

We better not lose our Duolingo streaks cuz of this maintenance break. I’m at 2204

[Hank Green @hankgreen]

Hey, uh, don't kick the accessibility buttons that open doors for people. People have to touch those and they don't know where you shoe has been.

[Natanya Rose @natanyarosee]

#pandaspans #panspandas #basalgangliaencephalitis #autoimmuneencephalitis #braininflammation

[Natanya Rose @natanyarosee]

PANDAS/PANS/BGE awareness Challenge, day one: Busting Myths
A thread

1. It’s only caused by strep

While PANDAS is only caused by strep, PANS basically the same thing, the only difference is it can be caused by any disorder.

[Natanya Rose @natanyarosee]

5. It’s always acute and can’t be chronic

While it’s mostly known for being an acute onset, it can become chronic if not treated quick enough or correctly. It’s more rare, but some people will also have a more gradual progression of their symptoms

[Natanya Rose @natanyarosee]

3. Adults can’t have it

Many adults have P/P/BGE. They can develop it as a child and continue on to adulthood or even get it as an adult.

4. You have to have tics

Tics are a common symptom, but only around 70% of people have them.

[Natanya Rose @natanyarosee]

2. It’s a rare disease

1 in 200 children are diagnosed with PANDAS/PANS. This means it’s not rare. It’s is also often misdiagnosed because it is such a complex disorder.

[Natanya Rose @natanyarosee]

Ew what happened to the twitter logo? When did this happen? I only check like every few months. I hate it.

[Natanya Rose @natanyarosee]

I’d love to see the data if they were accurately recording Covid data.

#tuberculosis is a horrible deadly disease, no doubting that, but we need to stop ignoring #covid

#longcovid #covidisntover #wearamask #pandemic #infectiousdisease

[Dr. Lisa Iannattone @lisa_iannattone]

@danitasteinberg This is increasing because most patients have no idea if they’ve had covid in the last year. Most aren’t even aware that covid has continued circulating at high levels and very few test themselves anymore. So if they develop LC, it really does seem like a mystery illness to them.

[Natanya Rose @natanyarosee]

My brother’s dentists, neighbor’s lizard’s dad is cis and he said I can say cis, so I get a cis pass. He also said I can give “cis passes” to whoever I want.

[Natanya Rose @natanyarosee]

#pandaspans #pandassyndrome #basalgangliaencephalitis #autoimmuneencephalitis #lyme #lymedisease #chroniclyme #braininflammation

[Natanya Rose @natanyarosee]

@blehvi @hutchleah It was so close then turned the wrong way😭

[Natanya Rose @natanyarosee]

https://t.co/iuMoB3IVlP

[@[email protected] @Imani_Barbarin]

I was at a conference this weekend and was with my crutches and this little girl (toddler) kept looking at them and so I explained, but she still looked confused.

Her mom came up to me later and said “I told her your crutches are like Sun Spider and she got it!” 🥺

[Natanya Rose @natanyarosee]

#longcovid #autoimmuneencphalitis #pandaspans #panspandas #basalgangliaencphalitis #pseudotumorcerebri #pots #potsyndrome #mecfs