We can’t wait to see you at the Rare Bleeding Disorders Virtual Conference today! We have exciting LIVE Beauty in Rares Opening Session to connect and share experiences!
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We want to hear from you! Would you like to share your view to inform new areas of #bleedingdisorders research? We’re hosting a series of listening sessions. Click here for more info: https://t.co/lRgLVZNUGf
Did you know that we will have special guest appearances at Camp at BDC sponsored by Takeda? Don't miss out on Pat Torrey from @gut_monkey @pjlynch from Believe LTD, and @AdventureHemo from @SaveOneLifeInc
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As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific effects on people with bleeding disorders. Here are answers to those questions.
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Today is #GivingTuesdayNOW an opportunity for people around the world to stand together in unity! We ask that you recognize this global day of giving my scheduling your gift for #OmahaGives (May 20) here: https://t.co/wzqn21sxzI
There are simple practices we can all do that lead to resilience, optimism, courage, perseverance, and hope. See how these practices can help change your outlook.
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While the bleeding disorders community has changed drastically over the past several decades, it is important to look back and see how far we've come.
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While hemophilia is primarily a disease that affects males, it is sometimes forgotten that women who are hemophilia carriers can have bleeding symptoms as well.
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In response to the recent unexpected number of recalls and other product safety issues, NHF and @hemophiliafed have responded to our community’s needs and assembled a Safety Summit to be held in January of 2020.
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By getting a bone density check, your health care provider can give you recommendations to help avoid osteoporosis and fractures.
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Regardless of the type of treatment you’re receiving for your bleeding disorder, sticking to the treatment plan is a big part of its success.
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