@GoAwayCaroline@MastcellMadness I have ME and I kept working a full time job and do normal things until I became bedbound as a young person. I have my official diagnosis and all. Millions of others like me around the world. You can google it and be proven wrong. Nothing else to say dude. You’re just wrong.
@GoAwayCaroline@MastcellMadness People who do that usually end up bedbound. If someone claims to have ME and exercises, either it’s very early stages where they don’t notice the decline or they don’t actually have ME and it’s something else.
I’m tired of pretending I’m okay with having no real friends. i see people laughing together, making plans, having someone to call, and i wonder what it feels like to actually have that. I’m not asking for a hundred people. i just want one person who genuinely stays.
seeing your age group having the best time of their lives while you’re at your lowest trying to figures things out - is another type of pain no one talks about.
@namelessbanana@ChronicallyTina@taliflwr@aladyvanished I’m glad you’re feeling better but there are still millions around the world with ME who cannot get better because the medical professionals around them don’t believe in ME. Most people end up bedbound because they ignore symptoms and try to live life if nothing is wrong.
It’s really frustrating. My dad thinks I’m either faking or exaggerating my ME since I got it pre-covid, but it really is that serious. Why would a teenager who loved working and studying fake an illness? People struggle with understanding that we desperately want our lives back.
genuinely disgusting to classify a whole group of people as “faking” their disability because you personally don’t think they need a mobility aide. genuinely rot. what on earth do you think they gain from faking a disorder that severely limits you.
i promise you i didn’t go from someone who went on runs at 5 am, went on weekly hikes to bird watch and did at home hiit workouts every day to someone who spends most of their day on a couch trying not to cry from pain for no reason. nobody does.
@milli_mlenary do you know how much it sucks to be home bound? to miss opportunities because your body can not handle it, to leave the house only for doctors appointments? do you remember lockdown and how much that sucked for able bodied people? imagine being constantly in pain on top of that
@sublimepilgrim@Safety Nah I think some people just like to lurk. I have ME but I don’t think I’ve posted anything about it until this week. I do hate the idea that someone’s out there trying to discredit ME again.
@02_garrett@oso_de_gym I don’t think Grindr is a place for guys to fall in love. In fact, I’m sure the kind men of Grindr will welcome him with open arms despite all hypocrisy someone may have.
@LakeEffectBro@notkimberlyno Most wheelchair users can walk to some extent but not for a long time. Kinda like how grandma can walk but a powerchair would help her go more places.
I wonder if they caught covid recently. That might explain some of the behaviour. Because if you’re a young person whose life went to shit recently, you might lose your mind.
reminder that serene_necrosis had a maskless indoor wedding in 2023 and also accused a widow of killing her husband (who died of cancer) by having a maskless outdoor wedding!
@gromitreads Idk about other countries but there’s not a lot of ME specialists in Canada. There’s like one in BC and zero working in Ontario. My friends in Ontario can’t even get diagnosed because of it. If it’s rare like ME, it’s luck of the draw if anyone in your area knows of it here.