Cure NF2 Foundation UK & Europe

Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Living with NF2 brings unique challenges, but new strategies can help. Discover how psychological approaches and neuroscience-based tools empower individuals to manage stress and find meaning.

Watch the recording of our latest webinar here: https://t.co/UuJqvoRLUs

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: 25th June 10.30am BST
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: https://t.co/31WiZAmFcO
Guest speaker - Judy Dyer - Pilates instructor

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Fancy getting your hands on one of our brand new Tshirts?

You can order from our shop here

https://t.co/IV1TVj53oa

£16 including 2nd class standard postage

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Comprehensive characterization of spinal ependymomas in NF2-Schwannomatosis https://t.co/xFhoU95Cs4

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are celebrating Volunteers week from Monday 1 to Sunday 7 June 2026.
We want to thank all our volunteers for their tireless commitment to our charity and to raising awareness of NF2-SWN, commitment to the NF2 community, connection, sharing stories to overcome the isolation.

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are #NF2Aware Are You
Join our campaign, print your poster and be #NF2Aware

Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are still meeting those affected by NF2 highlighting their mental health and well being challenges.

We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression, stress.

Today we meet Simon

#endNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are #NF2Aware Are You

Join our campaign, print your poster and be #NF2Aware

Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are still meeting those affected by NF2 highlighting their mental health and well being challenges.

We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression, stress
Today we meet James

#endNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are #NF2Aware Are You - thankyou NHS Forth Valley

Join our campaign, print your poster and be #NF2Aware

Print your poster here>
https://t.co/1jnVwEo1R4
Send us a copy for our socials

#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are still meeting those affected by NF2 highlighting their mental health and well being challenges.
We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, anxiety, depression & stress
Today we meet Saskia

#endNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are still meeting those affected by NF2 highlighting their mental health and well being challenges.
We face a distinctive set of mental‑health and wellbeing challenges. NF2 significantly increases emotional strain, with higher rates of anxiety, depression, stress
Meet William

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Our amazing supporters!
We are #NF2Aware Are You
Join our campaign, print your poster and be #NF2Aware
Print your poster here>
https://t.co/1jnVwEo1R4
#endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
#NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

we ask you to watch this video, it is 3 minutes of your life.
To an NF2er that 3 minutes could change their lives for ever, that is EVERY NF2er around the world.
This is what we face. This is the mental and emotional toll of living with NF2.

https://t.co/EH9ShYBel3

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Emily Owen @nervetumoursuk ambassador shares a poignant poem with us in her blog.

Diagnosed with NF2 as a teenager, NF2 has caused Emily to lose her hearing, left her with facial weakness and with difficulty walking.

https://t.co/m4J2UzWnQm

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Our message is simple.
Fix the Gene, Cure NF2, Change Lives
Join Us.
Donate here:
https://t.co/GxGB97VYI9
or (USA/Canada/Europe)
https://t.co/6eL8PO4Wnu

Behind every diagnosis is a person, a family, a fight, read our journeys here:
https://t.co/s5LgDKYq1Y
#ENDNF2

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Register now & join the conversation .... Cure NF2 Foundation webinar on Mental Health TODAY at 11am ET, 4pm BST https://t.co/H6wis4s177

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

We are discussing mental health in NF2-SWN today. Now we meet Kim Whitlock, trustee of Cure NF2 Foundation UK & Europe.

Here Kim shares a very honest account of her recent surgery and its effects it has had on her mental wellbeing.
https://t.co/DDMOLjJu51

#endNF2 #NF2awareness

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Register NOW for Todays Webinar where we explore mental wellbeing in NF2-SWN https://t.co/H6wis4s177

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Our theme this NF2 Awareness Day is mental health and wellbeing with an NF2 Diagnosis We have met real people affected by NF2 highlighting their challenges in this area.

We face a distinctive set of mental‑health and wellbeing challenges in NF2
Today we meet Pujitha

#endNF2