Noa Amir

Paediatric Nephrologist, and PhD Candidate. Views my own.

[Noa Amir @NoaAmir9]

Such impactful work! You’re a true inspiration @Keliyari13 and team at @NIKTTaskforce!

[Keila Turino Miranda @keila_turino]

Amazing work by @NIKTTaskforce and Kelli J Owen!! Did you know that since the NIKTT was established, more Aboriginal and Torres Strait Islander people have been waitlisted for a transplant, and more people have received a transplant? #KidneyWk @ASNKidney @cansolveckd

[Shilpa Jesudason @shilpa_jes]

Trust and respect in the implicit and explicit relationships between #consumers and #researchers are the magic ingredients for successful #research #codesign. Learnings from @BEAT_CKD workshops @ANZDATARegistry @Kidney_Trials @cariguidelines @allisonjaure

[Noa Amir @NoaAmir9]

An important paper on public preferences for newborn genomic screening.

[Prof Zornitza Stark @ZornitzaS]

🤔#genomic newborn screening: which conditions to include?

👉75 members 🇦🇺 public: many views!

👉Prefer childhood-onset, defer to experts

👉Public funding important

🔥Out now @HumanGenomics

@DanyaVears @genetic_Fi @drstephbest @IliasGoranitis

https://t.co/Ev94pLjSmW

[Prof Andrew Mallett @AndrewMallett8]

HIDDEN no more? 🕵️‍♀️🕵️‍♂️

Up to 1 in 4 patients with kidney failure of uncertain cause actually have a genomically identifiable monogenic aetiology 🤯🤯

So excited to see the @kidgenaustralia HIDDEN study out in @CJASN!

@AusGenomics @ANZSN @HGSAAustralasia

https://t.co/IBf1MbafOM

[Int Society of Nephrology @ISNkidneycare]

Proposed three-talk model for SDM

https://t.co/TMn272aBNU #ISNTweetorial

[Int Society of Nephrology @ISNkidneycare]

📢 #Tweetorial alert!

“No decision about me, without me!”

Yes, this is the new mantra for patients with kidney failure before making a valid choice of treatment modality.

Let’s talk about Shared Decision Making (SDM) in Dialysis in this #ISNTweetorial 🧵

[Noa Amir @NoaAmir9]

@alportuk @MrsMakaton Yes absolutely! The study is still running!

[Katie Brown @Katie_AlportUK]

It was an absolute pleasure to be interviewed today for such an important topic within #alports, I am very much looking forward to seeing the impact this will have on future generations. @NoaAmir9 thank you for all you are doing.

[Noa Amir @NoaAmir9]

@MrsMakaton Gratitude absolutely goes both ways @MrsMakaton - thank you for sharing your journey!! Such a rich learning experience.

[Alport UK @alportuk]

The University of Sydney & KidGen invite you to participate in an interview study which seeks to understand the experiences of women with Alport syndrome along their journey.
The interview will take about 45 mins.
Visit https://t.co/wcJGP6SEyx or email [email protected]

[Alport UK @alportuk]

A truly fascinating two days at the #AlportWorkshop. What an incredible job from all out patient and scientist speakers, both in-person and online.

[Prof Zornitza Stark @ZornitzaS]

👉Out now @GIMJournal our latest @AusGenomics Delphi study:

🤔#Genomic utility: what matters to decision-makers?

🏆 clinical utility, diagnostic yield, timeliness of results

👏@drstephbest @IliasGoranitis @AndrewMallett8 @ZFehlberg

https://t.co/EXKjzLllib

[PKD Charity UK @PKDCharity]

💜With profound sorrow, we announce the passing of our beloved CEO, Tess Harris, peacefully on March 1, 2024.
A tireless advocate for PKD, her visionary leadership and dedication will forever inspire us.💜
Full statement: https://t.co/6Dr1km5nzP

[Swapnil Hiremath @hswapnil.medsky.social @hswapnil]

Well said

There’s no #renalism as bad as #pedneph flozination renalism

In @NDTsocial

https://t.co/cSt2johUoQ

[Noa Amir @NoaAmir9]

This brings me so much joy!! @DominelloAmanda @urko_fer @PlasticSoul05 you are such powerful advocates!

[Kidney Health @KidneyHealth]

Thank you to all who came and spoke with such passion about kidney health and the urgency for change at Parliament House today.

We're so proud to be part of our small mighty community.

#kidneyhealth #kidneycourage #kidneyhealthforall

[Michelle Rheault @rheault_m]

Did you miss the High-Impact Clinical Trials session at #KidneyWk? Full session is available here: https://t.co/b8gJ16P6DO

[Nicki Scholes @scholes_nicki]

Wow #kidneyweek has gone so fast. Thanks @ASNKidney for inviting me. Talking all thing QoL in PD. Loved catching up with friends and making new ones. @Flinders @song_initiative

[Rachel Lennon @RLWczyk]

The paradigm is changing- with integration of genomic sequencing into clinical practice- excellent @ASNKidney Homer Smith Award talk from Ali Gharavi 🤩- 🙏 for the @ClinGenResource shout out for kidney gene curation! #KidneyWk

[Swapnil Hiremath @hswapnil.medsky.social @hswapnil]

Its Live

Sparsentan in FSGS

@rheault_m on the big podium

NEJM paper https://t.co/A8jzsREhAG

#KidneyWk

[Kelli Owen @Keliyari13]

Our kidney community voices are being heard, actioned & embraced! 🌅