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Christine Brown
@npkua
Joined March 2010
0
Following
48
Followers
36
Posts
Christine Brown
@npkua
over 14 years ago
Use
@Goodsearch
to raise money for
#charity
when you search or shop online http://t.co/x6WAxqkT pls rt
Christine Brown
@npkua
almost 15 years ago
Ask your PKU question via the Ask the Expert portal on NPKUA.org today! August’s expert is Laurie Sprietsma, RD, LD, Metabolic...
Christine Brown
@npkua
almost 15 years ago
The NPKUA is proud to announce that Dr. Kristen Skvorak-Vallieu is our second NPKUA fellow! We will be funding her project entitled,...
Christine Brown
@npkua
almost 15 years ago
Ask your PKU question via the Ask the Expert portal on NPKUA.org today! July’s expert is Dr. Susan Waisbren, Associate Professor of...
Who to follow
NPKUA
@NPKUA_Info
The mission of the National PKU Alliance is to improve the lives of individuals with PKU and pursue a cure.
ESPKU
@official_espku
Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
Gregor Hammerschmidt
@GreXXL
PKU Patient & Advocate, Loving IT
Christine Brown
@npkua
about 15 years ago
The winner of the States was: but the true winner is everyone! We all need the Medical Foods equity act (S.311 and H.1311)...
Christine Brown
@npkua
about 15 years ago
Only a few days away from the NPKUA board meeting in DC, where we will meet with members of Congress to talk about the Medical Foods...
Christine Brown
@npkua
about 15 years ago
We are very thankful for Congresswoman Tammy Baldwin for introducing the bill to the House this year! Be sure to write your...
Christine Brown
@npkua
about 15 years ago
We are very thankful to Senator John Kerry (MA) for introducing the bill in the Senate this year! Be sure to write your senator and tell...
Christine Brown
@npkua
about 15 years ago
Battle of the States: This week we will have a contest to see which state can reach out to the most House Representatives and make...
Christine Brown
@npkua
about 15 years ago
The winner of the Battle of the Genders was: but the true winner is everyone! We all need the Medical Foods Equity Act (S.311...
Christine Brown
@npkua
about 15 years ago
You may be just one person. But if everyone places one call to their representative, Senators and House Representatives around the...
Christine Brown
@npkua
about 15 years ago
Battle of the Genders: Men vs Women- This week we will have a contest who can send out the most letters and emails to their local...
Christine Brown
@npkua
about 15 years ago
Happy Mother’s Day to all the PKU moms out there and all the women with PKU that are mothers. As a special thank you to our mothers,...
Christine Brown
@npkua
about 15 years ago
Need some talking points for your letter or phone call to Congress? Click here to get this handy flyer-...
Christine Brown
@npkua
about 15 years ago
Thanks to everyone who has contacted your House Reps. We look forward to supporting you May 23-25 in Washington, DC. If you haven’t done...
Christine Brown
@npkua
about 15 years ago
Now that you have sent an advocacy letter, use that information to contact your local rep and let them know you want them to support the...
Christine Brown
@npkua
about 15 years ago
Encourage friends and family members to reach out to their local representatives! Send them this link with some talking points to get...
Christine Brown
@npkua
about 15 years ago
Have any specific questions on how to contact your local rep about the Medical Foods Equity Act? Post here and we will be sure to help...
Christine Brown
@npkua
about 15 years ago
Never contacted your Senator before? Nervous? Don’t worry: we were too the first time. We will walk you though it to take the worry away....
Christine Brown
@npkua
about 15 years ago
Never contacted your Senator before? Nervous? Don’t worry: we were too, the first time we did it. We will walk you though it to take the...
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