NUCA

National Ulcerative Colitis Alliance

[NUCA @nuca_life]

Excellent thread regarding guidance on these foods! #IBD #nutrition

[Tauseef Ali MD, FACG AGAF FACP @ibdtweets]

Question to my dietary experts. What are you telling patients about plant based meat?
@GIdietitian @KatelynC_RD @DaraAMorgan @ea_haller @ashleykoff @TheGutHealthDoc
etal.

[Lilly Stairs @LillyStairs]

To all my #Boston area friends living with an #invisibleillness (anything from #autoimmune to #mentalhealth to #cancer and beyond). Have you ever had a difficult time getting a seat on the #MBTA? Or been criticized because you "don't really need one"?

[NUCA @nuca_life]

You may remember this gymnast with #ulcerativecolitis from the video of her routine that went viral. She talks about how the attention affected her and her work in spreading a positive message. #IBD #NUCALife
https://t.co/BOumOpZ45N

[Dan Sharp @DanSharpIBD]

I continue to see many #IBD patients in online groups blaming medication(s) for hair loss (while describing IBD-associated telogen effluvium). Sadly, attempts to explain TE hair loss often met w/resistance. Please read if you have hair loss w/IBD:

https://t.co/HQUhFw8tQz

[NUCA @nuca_life]

"We don’t take much notice of “friendly” bacteria all over us until something wipes them out—and something unfriendly moves in."
https://t.co/xkm1Bc64CL #IBD #microbiome #diet #bacteria #NUCALife

[NUCA @nuca_life]

Whoopsie doodle. What inaccuracies have you seen? How should the ostomy community handle them? via @ostomyconnect
https://t.co/OMHZ4E8XEx
#NUCALife #UC #colitis #ostomy #ileostomy #colostomy #innacuracies #ulcerativecolitis #stoma

[NUCA @nuca_life]

Score Prime Day deals while generating donations for National Ulcerative Colitis Alliance Inc. Go to https://t.co/zOSsZNlkem to get started.

[NUCA @nuca_life]

From Megan Starshak of @thegreatbm, a look into what it's like to experience the guilt and uncertainty that comes with remission from #IBD.
https://t.co/LnXRpv46fG
#UC #colitis #ulcerativecolitis #remission #NUCALife

[NUCA @nuca_life]

From @ownyourcrohns, a reflection on being in a relationship while coping with the complexities of IBD.
https://t.co/A6WcFVT9Yw
#UC #ulcerativecolitis #IBD #Crohns #jpouch #NUCALife

[NUCA @nuca_life]

Some of the reasons why the chronic illness space could benefit from more men taking leadership roles. via @spoonieIRONMAN
https://t.co/SDlaj1hscl
#IBD #Crohns #colitis #chronicillness #NUCALife

[NUCA @nuca_life]

More and more, we're seeing patients be the change. Is there a patient-created product that has made a difference in your life?
https://t.co/5Nf6NqL73w #IBD #colitis #UC #ulcerativecolitis #askpatients #NUCALife

[NUCA @nuca_life]

Enjoy the day! #NUCALife

[NUCA @nuca_life]

For this blogger, writing about ulcerative colitis is a way to cope. What are your strategies to deal with the day-to-day stresses of living with chronic illness?
https://t.co/mHOmkommyD
#ulcerativecolitis #colitis #UC #IBD #stressmanagement #NUCALife

[NUCA @nuca_life]

@LuthienIRL Happy to provide it! 😀

[NUCA @nuca_life]

People living with IBD are at increased risk of kidney stones, making hydration important, especially during warm weather. #Crohns #colitis #UC #ulcerativecolitis #kidneystones #hydration #ostomy #NUCALife
https://t.co/EZc7QvIdma

[NUCA @nuca_life]

One daughter whose father lived with Crohn's disease and died of kidney failure says "...it felt selfish to keep my kidney." #NUCALife #Crohns #IBD
https://t.co/7EhqsTIT0v

[NUCA @nuca_life]

One study out of Europe shows there may be an increased risk of cancer and this might mean that people diagnosed with IBD at a younger age need more or earlier screenings for cancer. #NUCALife #IBD #Crohns #UC #colitis #cancer
https://t.co/oL4dSQtSqk

[NUCA @nuca_life]

Have you though about #clinicaltrials? Patients have a lot of questions when it comes to thinking about participating. @crohnscolitisfoundation has put together a list of FAQs to understand the process. You can read it here:
https://t.co/pCNLla5lbl
#NUCALife #IBD #UC #Crohns

[NUCA @nuca_life]

👏🏻👏🏻👏🏻🙌🏻🙌🏻🙌🏻👇🏻👇🏻👇🏻

[Fumiko Ladd Chino, MD, FASCO @fumikochino]

Simple #TipsforNewDocs:
1) Introduce yourself & your role to everyone in room
2) never assume relationships, (verify spouse, kid, friend)
3) SIT DOWN (no chair? GET A CHAIR)
4) Speak in plain language (oncologist = cancer doctor)
5) “what ?s do you have” is better than “any ?s”

[Suzanne Morton 💙 @DrSCDonnelly]

Fab presentation ob psychological issues in IBD and nutrition from Ms Anne-Marie Chilton. Patients in hospital are traumatised similar to firefighters at World trade centre. Coping strategies can help or hinder. #BSG2019