Officialcorpal

Corpal is a not for profit support group and charity run by parents, families and carers of children and adults who have DCC or Aicardi syndrome.

[Officialcorpal @officialcorpal]

@officialcorpal We have a new #logo we hope you like it.

[Officialcorpal @officialcorpal]

Whether it's a big event or a small challenge, we'll assist you in raising money for our cause.

I'm always open to sharing my experiences with others so please don’t hesitate to get in touch [email protected]

#meettheteam #volunteer #trustee #corpal #acc #dcc #uk

[Officialcorpal @officialcorpal]

Hi, I'm Pete, the Fundraising Trustee at Corpal. I live in Bedfordshire with my wife and son. In 2020, during a prenatal scan, we discovered that Daniel had complete ACC. Corpal provided invaluable help and advice during this time.

[Officialcorpal @officialcorpal]

Corpal’s goal is to ensure expectant and new parents have access to the latest information and support about disorders of the corpus callosum. As a trustee I want to ensure that we have the funding to support this mission.

[Officialcorpal @officialcorpal]

If you're an adult around the UK or family in Scotland you are welcome to get in contact with me [email protected]

#meettheteam #volunteer #trustee #corpal #acc #dcc #uk

[Officialcorpal @officialcorpal]

Hello,
I am Rachel I am 27 and have CACC. I live in Elgin in Scotland. I am the Family Contact for Scotland, Adult Contact for the UK and Social Media Trustee and have been on the team just over 5 years.

[Officialcorpal @officialcorpal]

Did You Know:
We are on Instagram (new account) https://t.co/bnXtpWHJTe
You can follow our page Corpus Callosum UK, Events and Awareness and join our group on Facebook (please answer the three questions provided to join the group)
#corpal #acc #dcc #uk #awareness #socialmedia

[Officialcorpal @officialcorpal]

I am here to help as many families as I can through my role and experience. We live in Surrey and I am happy to connect with as many of you as possible [email protected]

#meettheteam #volunteer #trustee #corpal #acc #dcc #uk

[Officialcorpal @officialcorpal]

Hello, my name is Aspa and I am Corpal’s chairperson. I am a doctor in radiation & clinical oncology and a mum of three, soon to-be four. My middle child has complete ACC. We found out when I was 32 weeks pregnant.

[Officialcorpal @officialcorpal]

There was no-one to help or guide us towards understanding the diagnosis better. Through this tough time but most importantly seeing this little boy achieve on a daily basis, this experience has somehow transformed that initial fear into a mission for me.

[Officialcorpal @officialcorpal]

gathering, please get in touch!
Please don’t hesitate to email me if you any questions [email protected]

#meettheteam #volunteer #corpal #acc #dcc #uk

[Officialcorpal @officialcorpal]

Hi everyone,
My name is Amy Alderson and I am a volunteer for Corpal.

My son, Sebastian, was diagnosed with complete agenesis of the corpus callosum at 6 weeks old. Since his diagnosis I have made a commitment to raising awareness of DCC and how individuals can best be

[Officialcorpal @officialcorpal]

supported to reach their full potential. Through corpal, I want to be able to help and support others that are affected by this rare condition.
I live on the South coast in Bournemouth, Dorset.
If there is anybody local that would like to connect and potentially set up a local

[Officialcorpal @officialcorpal]

the position we are today without Corpal. This is my main reason for joining the team, to help other families as I was helped.
My inbox is always open [email protected]

#meettheteam #volunteer #trustee #corpal #acc #dcc #uk

[Officialcorpal @officialcorpal]

Hello,

My name is Maryleigh Belcher
I recently became Corpals Marketing Trustee alongside Sacha. I currently reside in Wakefield, West Yorkshire.

[Officialcorpal @officialcorpal]

My daughter Evelyn (1YO) was diagnosed with Complete ACC on our 32weeks scan which was then confirmed with an ultrasound and MRI after birth. It was a tough end to pregnancy and I felt I recieved no support from the hospital but thats where Corpal stepped in and we wouldn't be in

[Officialcorpal @officialcorpal]

Plus, did you know you can help Mother Nature breathe easier by going digital? And that's not all – while you're at it, you can also make a difference by donating to Corpal.

https://t.co/G52LxfyOZL

[Officialcorpal @officialcorpal]

Drum roll….. the winner of our Christmas e-card competition is Yvonne Williams! Congratulations Yvonne, we loved your design.

Why shell out precious pennies on stamps when you can send a thoughtful message to your loved ones with e-cards?

[Officialcorpal @officialcorpal]

Drum roll….. the winner of our Christmas e-card competition is Yvonne Williams! Congratulations Yvonne, we loved your design.

Why shell out precious pennies on stamps when you can send a thoughtful message to your loved ones with e-cards?