OurLittleOrganicLife

Just living...as green and harmlessly as I can. But for now I'll take just living. That seems enough for today.

[OurLittleOrganicLife @olorganiclife]

@KConlinetherapy @JBOccyTherapy @jdibon @BendyBrain @BluesteinLinda @jvsimmonds01 Lovely guide but some of the terminology isn't quite right. You could speak to @sedsconnective the ND Hypermobility Charity who developed the neurodivergence umbrella graphic initially for their help with terminology to fine tweak it? I'm sure they'd love to connect!

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective @SEND_Network @JGjanegreenMBE How do I know whether my child's non-attendance is based on physical issues or other issues within the school that they can't cope with (bullying or physical environment etc)? How do I unpick it?

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective @SEND_Network @JGjanegreenMBE When is a good time to know when to seek support when my child's non-attendance becomes more frequent? And where would I even go to seek it?

[OurLittleOrganicLife @olorganiclife]

I just wanted to say how great @JGjanegreen was presenting to NHS Sussex today - despite being ill plus technical issues. Exciting things happening/coming re #Hypermobility #EDS #HSD awareness in #neurodivergence pathways - things will get better!

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective @wossy Hmmmmm....connect the dots!

[OurLittleOrganicLife @olorganiclife]

@JGjanegreen CONGRATULATIONS Jane! Incredibly well-deserved.

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective I wasn't diagnosed as hEDS or ND yet when pregnant. I loved pregnancy but it felt like my bones were collapsing into each other with hEDS + relaxin combo. No one seemed to notice and my pn recovery was traumatic. After a few pn physio sessions was just left to sort it out myself.

[SEDSConnective @SEDSConnective]

It’s very easy to forget that the pain experienced by a child is real + to be believed. A child experiencing pain due to symptomatic hypermobility or physical health issues in #neurodivergence is just as likely to look strong + healthy as they are to look unwell/ill.#EDS #HSD

[SEDSConnective @SEDSConnective]

We're delighted to share our opening art event 'perspectives on pain' with @WellsbourneC . See poster for more information.

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

Taping, is it useful or useless ?
It's been around for about 30 years + very useful for symptomatic hypermobile joints, weakened muscles, ligaments. Every time I used to sprain my ankle or knee ligament I was sent away with absolutely NO support or even belief ..1/8

[OurLittleOrganicLife @olorganiclife]

@pot8um Yes!

[The New Yorker @NewYorker]

Nikki Dodd’s new documentary short shows how something as simple as plugging a fridge in on the street can, on a small scale, address hunger and reduce food waste at the same time. Watch here. https://t.co/6x6mZspYcl

[OurLittleOrganicLife @olorganiclife]

@CBCNS Very disappointing.

[SEDSConnective @SEDSConnective]

Did you know people with symptomatic hypermobility #EDS #HSD can often struggle with food sensitivity?

New blog out + the current Guidance by NICE on multiplex allergy diagnostic testing for people with allergy that's difficult to diagnose https://t.co/bsApT6MPj4

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective Such a lovely evening and nice to meet all who came! Looking forward to organising the next one.

[OurLittleOrganicLife @olorganiclife]

@YouTube Lisa Lansing! https://t.co/k0kj3zsHbk

[OurLittleOrganicLife @olorganiclife]

@SEDSConnective @karen_kazzie @hEDSrehab @healthwatchws @HealthwatchES @Carolinewebstar @robyndarcey5 @CrawleyWB @HeatherBeeSmile Welcome Karen @karen_kazzie

[OurLittleOrganicLife @olorganiclife]

If you were buying a #vegan #cookbook, what would you like to learn from the #nutrition section?

[OurLittleOrganicLife @olorganiclife]

Had the most amazing physiotherapy session with hEDS-aware Adam at Portland Physio in E. Grinstead, as recommended by @JGjanegreen and @SEDSConnective - I feel fantastic after just one visit!

[Robert Nemeth @robert_nemeth]

A bee brick - now compulsory in Brighton & Hove on new buildings after I raised issue at Council. Big victory.