its really just one hospital visit after another at the moment. i want to pull my hair out im so fustrated. im fine. the infection in my hand has spread. more antibiotics will hopefully fix it
My twin woke me up at 4am last tuesday saying "hey, i think I need an ambulance?"He did in fact, need one. Rushed to hospital, had emergency surgery. Scared the shit out of the entire family but he's doing much better now! Been a crazy crazy week
It arrived yesterday! We made some mods last night and today I tested my new wheelchair! I was out for hours today without the pain or suffering endured while using my old one. I can't thank everyone enough for their donations and kindness! Thank you all โค๏ธ
Thank you. Thank you everyone. We have hit the target. The chair is order and will be here maybe Friday, more likely next week. I can't believe this happened so quickly. Thank you for gifting me my independence back. Thank you for everything โค๏ธ
we are 132aud away from the total in under 24 hours. Thank you! Thank you so much. Thank you to everyone who has donated and shared. I can't even begin to say how grateful I am for your kindness. I appreciate you all so very much. โค๏ธโค๏ธโค๏ธ
we are 132aud away from the total in under 24 hours. Thank you! Thank you so much. Thank you to everyone who has donated and shared. I can't even begin to say how grateful I am for your kindness. I appreciate you all so very much. โค๏ธโค๏ธโค๏ธ
After some encouragement from some friends (and one of them telling my about Paypal pool) I've started a fundraiser to help me be able to buy a new wheelchair. My chair is broken, its being held together with a bunch of random parts from around the house and prays.
They can't even tell me what they want from me but deny me because I don't have it? Make that make sense. I will appeal with more even evidence and the newer stuff that's appeared but my god how can you ask for more when you don't even know what more you want?
Been denied access to NDIS funding because I didn't provide proof I've tried all treatments.....to the untreatable, incurable conditions that I have. I asked what more info could they need than 3 different specialists saying this, They said "I don't know,"
So yeah! That's the update, friends. More MRIs and CTs are in the works (either this month or next) keeping my head up, making more nerdy merch and doing the best with what I've got โฅ๏ธ
Last week we found out a lot of my pain and issues with my legs is likely down to scoliosis. We had missed this diagnosis because we had been X-raying my neck and the lower parts of my back to work out my pain. Suddenly there is a lot more sympathy from medical professionals
My poor physio has learnt everything he knows about @ruth_madeley and @sophie_aldred and their characters through my gritted teeth while doing physio ๐Talking about fave characters is a great distraction! He expects to see my new UNIT and Ace hydrotherapy gear this week ๐คฃ