Open Medicine Foundation Canada

OMF Canada is fundraising to support open, collaborative research to find treatments and diagnostic markers for ME/CFS and related chronic complex diseases.

[Open Medicine Foundation Canada @OpenmedfCanada]

One day left to take the CTN Lite survey.

We know energy is precious. If you have a few minutes to share your perspective, it goes straight to the researchers working on what comes next.

Closes tomorrow: https://t.co/maaDBdcLN0

[Open Medicine Foundation Canada @OpenmedfCanada]

May 12 marks International ME/CFS Awareness Day. This year we asked our community to share the questions they live with because of #MECFS. Here are some of their responses.

Visit https://t.co/Wt4ix7Nfo7 to join us in raising awareness.

#MECFSis #MECFSAwareness

[Open Medicine Foundation Canada @OpenmedfCanada]

What are your research priorities? Over 1k patients and caregivers have already shared theirs. The CTN Lite survey closes May 15.

Help shape research for ME/CFS. Caregivers can complete on behalf of patients & answers save if you need to take breaks.
https://t.co/maaDBdcLN0

[Open Medicine Foundation Canada @OpenmedfCanada]

Digital health in research means using tools like wearable devices to help people take part in studies. OMF’s Melbourne ME/CFS Collaboration has developed a novel digital health tool as part of their Personalized Treatment Trials project.

👉 https://t.co/2tLP2u5HwJ

[Open Medicine Foundation Canada @OpenmedfCanada]

🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!

👉 Sign up today: https://t.co/LHtI3Erj5a

[Open Medicine Foundation Canada @OpenmedfCanada]

A heartfelt thank you to our OMFCA community💙

In March, we welcomed 37 new Hope Builders, surpassing our goal of 30! Your support—whether through monthly donations or engaging in other ways—is helping us make progress in #MECFS and #LongCOVID research and medical education.

[Open Medicine Foundation Canada @OpenmedfCanada]

🧬Science Wednesdays: Repeatable vs reliable

At OMF’s Melbourne ME/CFS Collaboration, the team is assessing the repeatability and reliability of the FUNCAP questionnaire as a measure of in-the-moment functional capacity.

🔗 https://t.co/bpw0VJOUlq

[Open Medicine Foundation Canada @OpenmedfCanada]

⏰ Last Chance to Join Our March Hope Builders Challenge

There are just 24 hours left to join the Hope Builders and make a lasting impact. We’re just three supporters away—will you be the one to help us cross the finish line? Become a Hope Builder today: https://t.co/vbdvbeopr6

[Open Medicine Foundation Canada @OpenmedfCanada]

Nearly 20 years ago, Donni opened her own kindergarten. Four years in, everything changed. 🤝 She now supports OMF to find real answers for #MECFS & #LongCOVID.

🔗 Read Donni's story and join Hope Builders: https://t.co/CqsgxKFr0w

ART: “BEYOND THE GLASS” by Donni

[Open Medicine Foundation Canada @OpenmedfCanada]

Data artifacts are flaws or distortions in data, resulting from things like how the data were collected or processed.

👉 Read more about data artifacts in #MECFS research and OMF’s Computational Research Center: https://t.co/Ix3dBIWoWg.

[Open Medicine Foundation Canada @OpenmedfCanada]

🌸 Spring into giving and make a lasting impact by donating your vehicle to OMFCA. It's easy and tax-deductible. 🔗 Learn more: https://t.co/or8a1m9t8G

[Open Medicine Foundation Canada @OpenmedfCanada]

OMFCA invites you to join our community of Hope Builders — compassionate individuals who support OMF's research with a monthly gift of just $5 or more.

Become a Hope Builder: 👉 https://t.co/TvcEUGZx4z.

Help us reach more people by sharing this post.

[Open Medicine Foundation Canada @OpenmedfCanada]

Tina is one of the Hope Builders — monthly donors whose collective support helps keep OMF's research moving forward. This March, we're welcoming 30 new Hope Builders. Will you join us?

👉 Read Tina's story and become a Hope Builder: https://t.co/maGOX65lxb

[Open Medicine Foundation Canada @OpenmedfCanada]

🧬 Science Wednesdays: Citrate synthase

Learn more about citrate synthase and OMF’s Ronald G. Tompkins Harvard ME/CFS Collaboration study investigating post-exertional malaise via muscle biopsy 👉 https://t.co/wDs8HlCVKv

#MECFS #PEM #pwME #mitochondria

[Open Medicine Foundation Canada @OpenmedfCanada]

🗣️ Your voice matters! By sharing your story, you help raise awareness and deepen understanding of #MECFS, #LongCOVID, and related diseases.

Whether you're a patient, caregiver, family member, or friend, your experience is important. Submit your story: https://t.co/O0GvAx6Ahr

[Open Medicine Foundation Canada @OpenmedfCanada]

Today is #LongCOVIDAwarenessDay. Hundreds of millions worldwide are living with #LongCOVID. For many, it remains a daily struggle with no clear end and no approved treatment.

OMF supports studies that include Long COVID cohorts. Learn more: https://t.co/HesemnrQRw

[Open Medicine Foundation Canada @OpenmedfCanada]

From the OMF-supported MERC with @BatemanHorne: During a crash, #pwME may struggle to think or communicate clearly. Cards help patients point to needs like water, pain, light sensitivity, or emergencies.

Find these cards in our Crash Survival Guide: https://t.co/GwZfudI65C

[Open Medicine Foundation Canada @OpenmedfCanada]

💙 Will you take the next step with us? Join our community of Hope Builders by becoming a monthly donor to OMF Canada!! 👉 https://t.co/JpeIy1a17S

Your support fuels #MECFS and #LongCOVID research, bringing us closer to solutions.

[Open Medicine Foundation Canada @OpenmedfCanada]

🧬Science Wednesdays: Estimating Lifetime Prevalence of #MECFS

Based on published research, the lifetime prevalence of ME/CFS is over 279 million people, which is around 1 in 29.

🔗 Read more about lifetime prevalence of ME/CFS: https://t.co/d0peq7gQ3a

[Open Medicine Foundation Canada @OpenmedfCanada]

OMF Journal Club: March 11 at 11 am ET

Dr. Meadows will discuss the latest paper from Dr. Jonas Bergquist and collaborators: "Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection (PASC)." 👉 Sign up: https://t.co/7wj7x96GDR