ORDIndia

National rare disease advocacy, 24/7 patients hotline, engage Hospitals, Physicians, Pharma/Biotech/Dx industry, Orphan drugs act for India, Global Alliances

[ORDIndia @ORDIndia]

🧬 Rare Info Series #70

Early detection can change lives. Join us for an insightful session on "Newborn Screening for Core Disorders" with Dr. Seema Kapoor, moderated by Dr. Deepa Bhat.

📅 22 July 2026 | 🕓 4–5 PM IST
💻 Join via Zoom

#ORDI #RareInfoSeries #RareDiseases

[ORDIndia @ORDIndia]

🩸 Newborn screening for haemoglobinopathies —
Why early detection matters. Join @ORDIndia's Rare Info Series live on Zoom on 15th July 2026.
Details on the poster 📲
#RareDiseases #NewbornScreening #ORDI

[ORDIndia @ORDIndia]

Stronger together for rare. 🤝
On 1 July 2026, @ORDI received CSR support through the Pharmed Foundation for our tripartite project with Saranam India & @PharmedLimited: launching an Acute Care Response Team for rare & palliative care.
#RareDiseases #CSR #ORDI

[ORDIndia @ORDIndia]

Honouring a light that still guides the way!
On 1 July 2026, the birth anniversary of the late Mr Krishan Kumar Aurora, ORDI was proud to felicitate @PharmedLimited with the Rare Star Award 2026: CSR Partner for Rare (Pharma).
#RareDiseases #CSR #ORDI

[ORDIndia @ORDIndia]

ORDI was at @ICMRDELHI, New Delhi, yesterday for “Leveraging CSR for Rare Diseases: Enabling Access, Equity & Hope".
Our co-founder & ED, @Prasannashirol, joined the expert panel, putting patients at the centre of the CSR conversation. 🙌💫✨
#RareDiseases #CSR #ORDI

[ORDIndia @ORDIndia]

𝐇𝐚𝐩𝐩𝐲 𝐃𝐨𝐜𝐭𝐨𝐫𝐬' 𝐃𝐚𝐲 𝐭𝐨 𝐚𝐥𝐥 𝐭𝐡𝐞 𝐢𝐧𝐜𝐫𝐞𝐝𝐢𝐛𝐥𝐞 𝐝𝐨𝐜𝐭𝐨𝐫𝐬! 💙

#HappyDoctorsDay #DoctorsDay #DoctorsLife #HealthcareHeroes #ThankYouDoctors #MedicalProfession #HealingHands #CompassionInCare #DedicatedToCare #SaluteToDoctors

[ORDIndia @ORDIndia]

🌟 A Heartfelt Thank You to Our Esteemed Jury Members! 🌟Your time, thoughtful evaluation, and invaluable guidance played a vital role in making the Rare Star Awards 2026 a truly memorable celebration.

#RareStarAwards2026 #ThankYouJury #RareDisease #ORDI #RareDiseaseCommunity

[ORDIndia @ORDIndia]

🧠 World Brain Tumor Day – June 8
Today we raise awareness about brain tumors, support research, and stand with patients, survivors, caregivers, and healthcare professionals.

#WorldBrainTumorDay #BrainTumorAwareness #BrainTumor #CancerAwareness #BrainHealth #EarlyDetection

[ORDIndia @ORDIndia]

🧬 As precision medicine continues to transform healthcare, ethical considerations and community awareness play a vital role in ensuring informed decision-making and equitable access to genetic services.

📅 10th June 2026
⏰4:00 PM – 5:00 PM IST
🆔: 874 0733 6825
🔑 8892555000

[ORDIndia @ORDIndia]

Join us this World Health Day for an insightful webinar on “Data, DNA, and Dignity: Rethinking Rare Disease Care in India.”

📅 Date: 08 April 2026
🕓 Time: 04:00 PM – 05:30 PM
🔗 Register now and be part of the conversation: https://t.co/h3rVbFMcvZ

#WorldHealthDay

[ORDIndia @ORDIndia]

🧠 Epilepsy & Mass Screening Camp | ಫಿಟ್ಸ್ ತಪಾಸಣಾ ಶಿಬಿರ
👨‍⚕️ Neurologists | Pediatricians | Genetic Experts
📅 May 3, 2026 | ⏰ 9AM–2PM
📍 Sri SBS Ayurvedic Medical College, Mundargi
📞 8892555000 | 🌐 https://t.co/d8DFYCAX6f
#EpilepsyAwareness #HealthCamp #RareDiseases

[ORDIndia @ORDIndia]

Understanding the latest advancements and real-life challenges in managing xeroderma pigmentosum is crucial for improving patient care, awareness, and long-term outcomes.

#ORDI #RareInfoSeries #XerodermaPigmentosum #RareAwareness #RareCommunity #GeneticDisorders #RareSupport

[ORDIndia @ORDIndia]

A Journey of 52 Weeks Comes to a Meaningful Milestone 💜

We are proud to celebrate the successful completion of the Rare Info Series – 52 Weeks by ORDI.

#RareInfoSeries #ORDIIndia #RareDiseases #AwarenessMatters #HealthcareCommunity #MedicalAwareness #52WeeksJourney

[ICMR @ICMRDELHI]

Why do rare diseases happen? 🧬
Dr. Monika Pahuja, Scientist, ICMR , explains: https://t.co/rRIde1X1Iu

#ICMR @DeptHealthRes @MoHFW_INDIA

[Dr. Prabhudev M Hiremath MD 🧠 @Neuroptimist23]

I was honored to attend and deliver my talk on rare disorders on Rare Disease Day at RV nursing college and Physiotherapy centre in #Bengaluru. It was a great interaction with the curious crowd.
@ORDIndia
#RareDiseaseDay
#Medtwitter

[ORDIndia @ORDIndia]

🌸✨ 𝗛𝗮𝗽𝗽𝘆 𝗛𝗼𝗹𝗶! ✨🌸

#HappyHoli #FestivalOfColors #CelebrateWithJoy #Holi2026 #CelebrateWithJoy
#ColorfulVibes #SpreadLove #HoliCelebration #IndianFestival

[BioVoice News @BiovoiceNews]

HEALTH: @novonordisk & #ORDI partnered for the 11th edition of #Racefor7 run in Bangalore. From #patients and caregivers to clinicians, the event brought together diverse voices in a collective push for stronger #healthcare.

More details: https://t.co/PNMyBgaBqD…

[ORDIndia @ORDIndia]

The Government of Karnataka is set to announce the State Rare Diseases Policy — a major step toward better care and access.

Grateful to Dinesh Gundu Rao for his commitment to strengthening support for the rare disease community.

#RareDiseases #Karnataka #ORDI

[ORDIndia @ORDIndia]

Grateful for this powerful gesture of solidarity.A popular leader like you flagging off #racefor7 in Bengaluru sends hope to families fighting silent battles every day.Commitment to launch Karnataka State #RareDiseasePolicy brings renewed faith that change is truly on the horizon

[Dinesh Gundu Rao/ದಿನೇಶ್ ಗುಂಡೂರಾವ್ @dineshgrao]

Deeply honored to flag off the ORDI Rare Disease Awareness Run in Bengaluru, a powerful testament to the extraordinary courage, resilience and indomitable spirit of individuals and families living with rare diseases, and a reaffirmation of our commitment to stand beside them with stronger care, early diagnosis, research and hope for a better tomorrow.

[ORDIndia @ORDIndia]

Join us in making every step count at the Race for 7 – 11th Edition, organized by ORDI (Organization for Rare Diseases India). 🏃‍♂️🏃‍♀️

Run for Rare. Run for Lasting Care.

🌐 https://t.co/0w5rTrcstB
📞 [phone]

#RaceFor7 #RunForRare #ORDI #RareDiseaseAwareness