Top Tweets for #RareSupport
Project Sebastian will be at the Batten conference in July! Calling all Batten warriors!!#RareDisease #RareSupport #RareGroups #cureraredisease#BattenDisease #Cln8 #treatments #cures #supportgroups @GagavProject
ALL CAN PARTICIPATE! RUNNERS, WHELLCHAIRS, WALKERS, BLIND, AIDES! #RareDisease #RareSupport #RareGroups #RareRun #RareWarrior5X5 #cureraredisease #RaceForACure #RaceForSupportGroups #BattenDisease #Cln8 #YouCanDoIt #running #funraiser #supportgroups "@GagavProject
"Saturday may 20th in person and virtual! Sign up today!
#RareDisease #RareSupport #RareRun #RareWarrior5X5 #cureraredisease #RaceForACure #RaceForSupportGroups #BattenDisease #Cln8 #YouCanDoIt #running #funraiser #treatments #cures #supportgroups #may20th" @GagavProject
"Its time to connect! What are you waiting for?? @GagavProject
#RareDisease #TakeoverTuesday #RareSupport #RareGroups #BattenDisease #CLN8
"California recognizes Batten Disease on the first weekend in June! Thank you Senator Wilk! @GagavProject
#RareDisease #RareSupport #RareGroups #CureRareDisease #BattenDisease
#CLN8 #Treatments #Cures #SupportGroups #California
At Project Sebastian we have weekly support groups every week both in person and virtually, not just for those living with #BattenDisease but across the #RareDisease space! @GagavProject
#RareSupport #RareGroups #cureraredisease #Cln8 #YouCanDoIt #supportgroups
#TakeoverTuesday
"We are Project Sebastian. I am a rare dad just like you. You are not alone. We see you! lets connect and support eachother! #RareDisease #RareSupport #RareGroups #RareRun #cureraredisease
#BattenDisease #Cln8 #YouCanDoIt #TakeoverTuesday @GagavProject
Today is a gentle reminder to love on the women in our lives (including ourselves)💚 It only takes a moment to tell someone they are appreciated.
#internationalwomensday23 #cystinosiswarriors #cystinosiscaregivers #raresupport
@ZHeatherChamp @lisadbudzinski @lseiders3 @Raresupport @Srotberg15 @taylorkane23 @RareRevolutionM @DrPas84Ele @courtney0874 @bbhomebody The #RareSupport tweetchat originally scheduled for tomorrow, May 15th, has been postponed to allow more time for planning. We’ll let you know the new date once it is set & hope you will join us.
The #RareSupport tweetchat originally scheduled for tomorrow, May 15th, has been postponed. Stay tuned for the new date. In the meantime, follow @Raresupport & continue to share relevant resources with the #RareSupport hashtag.
@lseiders3 @RarePOV @Raresupport @Srotberg15 @taylorkane23 @sixnwstevies @RareDiseaseGh @lbdeck @cmutena @courtney0874 @ZealAccess @RareRevolutionM @WallaceUofE @Purrfectly_Rare #RareSupport
@kmfigley No need 2 apologize..I get it, I really do. Im so sorry for what you are going through & I wish I could give U some amazing words of wisdom which would make everything better...but we both know that isnt gonna happen
Just know UR not alone!
Sending gentle hugs
#RareSupport #CRPS
EXTRA! EXTRA! Read the newest edition of PWSA (USA) School Times here! This e-newsletter covers topics from planning next year's IEP to tips on home schooling and more. DM us your email address to subscribe!🗞🆕🙌🧡 #PWSA #PWS #PraderWilli https://t.co/hg04wurGb9
Just found out that Thx 2 my prof giving me chance 2 take “I”s I will graduate this semester while I makeup coursework this summer
Can’t find the words 2 say what this means
@SUNYCantonNews understands the importance of looking @ students 1st & foremost as a humans!
#RareSupport
Hubby called home during break in court said saw my tweet about "failure";
"I only have a few mins but no more talk of being a failure. U only fail or let me down when u give up totally & I know u'll never do that.U are too stubborn, I know from being nagged by U."
#RareSupport
Rare Support is now on Facebook. Please like us at https://t.co/9ZWPzUPhpP
If it doesn’t work let us know. It means we are doing something wrong! 🤷♂️ #RareSupport
@lseiders3 So excited to see this! Such an important discussion & fantastic groundswell of interest! #RareSupport
@RarePOV Yes!! And when a caregiver, whoever they may be, lacks support what does that do for patient health? Full circle. #RareSupport
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