ISurvivor Lisa Deck

❤ Mom & Wife * Experienced Speaker & Patient Advocate * #StrokeSurvivor * Founder Sisters@Heart * #Moyamoya warrior; #RareDisease Fighter; #Heart Spokeswomen

[ISurvivor Lisa Deck @lbdeck]

Check out this gig! https://t.co/9iTDvtfsdm

[Catherine Stratton, MPH @cathsmstratton]

Forever grateful for the care I received at @SickKidsNews and it’s rather cool to see #Moyamoya featured for #RareDiseaseDay! Proud to advocate with @moyamoyafdn @HouleMoyamoya @lbdeck!

[International Pain Foundation® @iPainOfficial]

Congratulations - Featured in 2024 Winter #iPainLiving Magazine - #InternationalPainFoundation's Top 2024 #RareDisease #Advocates include - @iPainOfficial @KaplanOLab @keeganj @kenraytaylor @KimSteeleMD @Lene_Jensen_DK @Lia_MedicalMama @lbdeck @michelerhee

[ISurvivor Lisa Deck @lbdeck]

Sisters@Heart presents first publicly accessible AED device to Town of North Attleborough   https://t.co/lI3abqXVD1 via @NStarReporter

[NAHS Athletics @NAHSAthleticDpt]

Football takes on Taunton this THURSDAY at 6pm at Beaupre. Please bring your donations for our Families in Need Drive collected at the ticket gates. @HockomockSchools @NAPublicSchools

[Butler Kev @AyanaHe33913599]

Ready to really advocate for your community?

Learn the basics of legislative advocacy & how to craft the perfect pitch for legislators in this @WEGOHealth course by @lbdeck

Don't miss out: https://t.co/SyCBMrSnnJ

[ISurvivor Lisa Deck @lbdeck]

Thank you @RepAdamScanlon for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues @AmericanHeartMA #heartonthehill @SistersAtHeart3

[ISurvivor Lisa Deck @lbdeck]

Thank you @PaulFeeneyMA for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues @AmericanHeartMA #heartonthehill @SistersAtHeart3

[Catherine Stratton, MPH @cathsmstratton]

And that’s a wrap! It was amazing to present at the #AAN2023! Very grateful for the opportunity to learn and to share this work with others. #AAN #AANAM2023 #moyamoya #RareDisease #registries #epidemiology

[Tram Nguyen @TeamTram]

Today I am joining my State House colleagues in wearing red in support of #GoRedforWomen. Heart disease and strokes are the leading cause of death for women; please be aware of your health, and make your heart health a priority. @MAWomensCaucus

[Vanna Howard @RepVannaHoward]

Today I’m wearing red on #WearRedDay to encourage women of all ages to take charge of their heart health. Join me, the American Heart Association of Massachusetts, and the Massachusetts Caucus of Women Legislators in the fight against heart disease. #GoRedForWomen

[American Heart Association: Massachusetts @AmericanHeartMA]

Featuring Massachusetts stroke survivor and patient advocate @lbdeck!

[ISurvivor Lisa Deck @lbdeck]

The winner is being pulled tomorrow!
It’s your last chance to purchase #taylorswift raffle tickets to win two concert tickets! All to benefit @tri_countycheerleaders bid for Nationals! https://t.co/Ya2NptWJk1

[Eden Lord @emlord]

It was a pleasure to discuss the need for immediate access to #raredisease #patientrecords and protocols with @RD3602. https://t.co/27oGopqPS7

[ISurvivor Lisa Deck @lbdeck]

I’ll be attending the @RallyForNIH in DC after attending a few years ago. Love using my voice for #advocacy & #policychange Who else will be at the #RallyMedRes

#stroke #moyamoya

[Rally for Medical Research @RallyForNIH]

In 2013, thousands of people gathered in Washington, DC to ask Congress to make medical research a national priority. On September 13-14, we will convene on Capitol Hill again to celebrate the 10th Annual Rally for Medical Research. Join us:
https://t.co/D1dwwZMv52
#RallyMedRes

[ISurvivor Lisa Deck @lbdeck]

@Purrfectly_Rare @PatientWorthy @RareDiseaseDad @bbhomebody @lisadbudzinski @BarbyIngle @mlweldon5 @WhItscomplex I was just looking for one so this may be perfect. Yet I need to be sure I can and that there is no conflict of interest. Stay tuned!

[myTomorrows @myTomorrows]

Please join our Twitter chat tomorrow with @EMoriartyWade and @TerriEllsworth for #ClinicalTrialsDay! #CTD2022

[ISurvivor Lisa Deck @lbdeck]

There are still stipends available for this awesome #advocacy day! Join @RareAdvocates in #boston for an in person advocacy day!!

[RareNewEngland @RareNewEngland]

Join RDLA in Boston, MA on June 9th for State Advocacy Day, follow the link to register: https://t.co/xq7ml4rbrP
#raredisease

[ISurvivor Lisa Deck @lbdeck]

@NeenaNizar As beautiful as ever tho 💙

[ISurvivor Lisa Deck @lbdeck]

Way to go @cathsmstratton @moyamoyafdn !! Big news for the #moyamoya community!

[Catherine Stratton, MPH @cathsmstratton]

I am so thrilled to have announced the Global Moyamoya Patient Registry! This is an initiative I have been working on for quite some time with @moyamoyafdn! We hope having a patient-facing registry with a global scope will optimize research! #RareDiseaseTruth #PatientEngagement