Great turnout for last nights DNAC meeting at @angletreebrew and for our donation of $2000 to @SistersAtHeart3. Sisters At Heart is a local charitable organization that gives back to individuals and families affected by heart disease. They do wonderful and important work.
I’m happy to be part of @HealtheVoices' next #HealtheVoicesHCP session! We'll discuss how caregivers and HCPs can use social media to improve relationships that support positive patient outcomes. Register: https://t.co/mrjCOLcxcy #GenerationCare
Calling all students interested in Genetics! Join us for a 1-hour webinar featuring professionals in the fields of industrial, clinical, and laboratory genetics March 15th at 6:30 PM ET. Register here: https://t.co/ce36OFdtD8
#raredisease
For our 7 for Rare campaign, we want you to share with us 7 words of encouragement for rare disease families. Comment below! #7anything4rare#raredisease
Congratulations to North football captains, Tyler DeMattio- Running Back, Jared Vacher- OLine, and Tyler Bannon- Linebacker. All three made the 2021 MHSFCA Division III All-State team! #GOBIGRED!!
Our newest World of Rare Disease episode features Dr. Stanley Crooke who shares his career and involvement with the rare disease community, including his foundation, @n_lorem. Check it out: https://t.co/pVZqXT3BzT
#raredisease
Our support groups are happening this Tuesday (12/14) and we would love to see you there. Sign up at the link below #raredisease
https://t.co/CptonmaOEo
Over the next weeks & months, tens of thousands of college admission decisions will be released. Your value & worth are not tied to whether you are admitted, deferred, wait-listed, or denied. Trust the research you did to find #FiveFirstChoiceColleges for your Apply List!
Raise A Glass For Rare🍷 Start your Holiday shopping now!
Chateau STE Michelle $12.99
Klinker Brink “ Brick Mason” Red Blend $14.99
Wine available at City Spirits locations in Attleboro/North Attleboro, MA.
#raredisease
RNE's Annual Conference will be held virtually on Saturday, October 23rd. We will host a day of education and information to the rare disease community. Caregiver and Patient tickets are FREE this year. Don't forget to register! #raredisease#virtualRNE
https://t.co/xlZCZnyPXX
Enter our 2021 Conference Raffle for a yeti cooler (image below) or a $100 Amazon gift card! $10 for 1 entry or $50 for 10 entries. Use this link to enter: https://t.co/u4A5q76U9l
Register for the conference at: https://t.co/OuP7Ao0bR5
#raredisease#rne#virtualRNE
Save the date and register for Rare New England’s Virtual Conference on October 23rd! Tickets are free for rare disease patients and caregivers. Register here: https://t.co/C7GBLFQvFW
#raredisease#rarenewengland#virtualRNE
Friday is Klippel-Feil Syndrome Awareness day. KFS constantly affects my body in ways I never could have imagined. My choice is to do what I can, even though it hurts tremendously & I struggle. I use my body as hard as I can & find peace wherever I can. #raredisease@KFS_Freedom
House Calls: Moyamoya Disease - Weill Cornell Medicine Events https://t.co/ZbiM0TOnHN
This free virtual event (webinar) is Aug 3rd, at 5:30pm click the link to register.