Orkambi then

Fighting for the futures of those with CF - with the odd random comment to help me keep sane in this dark time. What about us?

[Orkambi then @OrkambN]

@doctor_oxford @mrjamesob @LindaFoundation I agree P

[Orkambi then @OrkambN]

@ChrisToseland @CR_UK https://t.co/xqeTqRBNbp

[#KickChildhoodCancer 🎗 @ZScottFanClub]

This busy toddler just had his 39th #CARTcell infusion. #DIPG has average life expectancy of 11 months post diagnosis. Gavin is 2 years in & symptom free. Words don't do justice to the hope in my heart. It's INCREDIBLE! #GavinsGuardians #DIPG #BrainChild03 #CureDIPG #VitanzaLab

[Gayle Pledger @gayle_pledger]

Looking forward to hearing @VertexPharma’s fourth quarter financial results later today. No doubt there will be celebrations & record profits while children in low and middle income countries are begging for their lives 😢

https://t.co/wa4U2aeT9p

[Dara Ó Briain @daraobriain]

Here is my annual reminder that if Santa is bringing a games console, Santa might want to plug it in and turn it on and get all the updates done now, in advance, so that it is all ready to go on the big day.

[Orkambi then @OrkambN]

@VertexPharma @BosBizJournal "We are proud to be named one of the Most Charitable Companies"..... whilst simultaneously allowing thousands to die around the world through exorbitant charging on your CF drugs. Well done, give yourself a pat on the back

[Orkambi then @OrkambN]

@LloydsPharmacy The number I was given to call back on - 0345 2636123. Either doesn't ring (too busy) or you go through the endless automated options, only to be cut off.

[Vertex Save Us @VertexSaveUs]

In #CFAwarenessMonth we ask that the #GlobalCFFamily stand together, raise our voices and demand that @VertexPharma get their life-saving drugs to ALL that need them. None of us should ignore this inequitable and inhumane situation any longer. #Trikafta4All #EnoughIsEnough $vrtx

[Orkambi then @OrkambN]

@stellacreasy @westmercia police inspector told my wife our child wasn't the responsibility of the police when she asked to go part-time. Also said his wife gave up work when they had children. He' since been promoted 🤦‍♂️

[ESPN FC @ESPNFC]

Real Betis fans threw thousands of stuffed toys onto the pitch at half-time yesterday 🧸

It's an annual tradition to make sure disadvantaged children don't go without a gift at Christmas ❤️🎁

[Orkambi then @OrkambN]

@Otto_English If she was truly sorry she should come clean on what she knows of the party

[Orkambi then @OrkambN]

@mattybellis @mrjamesob @dan_fuzz @gotpowerdp @LBC @breadhnach Not sure I would describe James O'B as main stream media. Might not be in this mess if he was.

[Orkambi then @OrkambN]

@scottcorkum88 @F1 Off the track?

[Orkambi then @OrkambN]

@CarolinePKU @PKUFamily @Jeremy_Hunt @NICEComms @NHSEngland @blakeydark Shame he wasn't on the case when Health Secretary for 6 years during fight for Orkambi and Kuvan, but better late than never I guess.

[Orkambi then @OrkambN]

@cflounge Vertex clinical trials use Nuvoair. Seems broadly inline with the clinic results.

[Orkambi then @OrkambN]

@Joanneosmond @cftrust @ChildrensUnit @CfVoices

[Just Treatment 💊 @JustTreatment]

Seems like the government doesn't want the public to know that "new hospital" doesn't necessarily mean an actual new hospital...🙄🤦‍♀️

RT to spread the word and expose the truth!

[Orkambi then @OrkambN]

@PostTruthPaul @NorthernLad20 @johnestevens Room service

[Orkambi then @OrkambN]

@VertexPharma @mycampsunshine Well done - just a thought, how about lowering your prices and providing true global access to your medicines to support children with life threatening illnesses and their families?

[Mike Galsworthy @mikegalsworthy]

Please everyone retweet, so that @MarcusRashford sees it.

This is the country I want. This is what community is about. ❤️