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👨🏻‍🦰 ☘️ with CP & epilepsy laughing through ableism! Booking info:

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It’s finally ready! Thx to those in Denver for having me last year & @zahiddewji for the 👕! @BrainAblaze @DCClifford @UCLANeurology @kaileyh175 @DavidBSamuels

#sitdowncomedy #CerebralPalsy #EpilepsyAwareness #EEG #linkinbio

https://t.co/A8GqpBd3yV

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@BrainAblaze I’ve had multiple seizures in the
passenger’s seat. But, every body is different!

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@BrainAblaze Thinking that just b/c someone says they’re a nurse, that kind of readiness is in their personal life too (Lots of people are afraid of rescue nasal spray 😳😅).

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@BrainAblaze That’s worse than the time I got reiki for my widespread chronic pain at 13 (My folks didn’t know that’s what it was & were trying all kinds of snake oil till I got transferred to my current docs a few months later).

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@BrainAblaze Failed 4 meds during the pandemic & the last two I tried that made 6 are my still current combo. So, yes!

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@BrainAblaze I even take pics to remember what I ate! 😅

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@BrainAblaze Yes! Like the time I lost a friend b/c I showed them my nasal rescue spray. It’s confusing when routine care scares people away.

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@kaileyh175 @jaredhull96 @BrainAblaze Seizures can be hysterical (But, only to us). The point of the blog post was to tell abled people not to generically joke about epilepsy as that creates stigma which declines us epileptics the actual help we need.

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@BrainAblaze I check for vents as soon as I go in somewhere & sit on the opposite end (And, always bring my nasal rescue spray).

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@BrainAblaze I’m good in warmer weather for seizures & cooler/cold is a spastic CP issue. It really depends on random wind gusts. I’m always bundled now especially during prime football season like now due to my reflex triggers.

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@BrainAblaze A neighbor bought me a huge Skyy bottle for my 21st birthday unaware I have liquor triggered epilepsy & had this exact face!

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@Zackkly It was! During Thanksgiving. Plenty of games on. It was the most quiet seizure inducing experience ever! They caught the seizure while I was laughing with the caretaker (person who replaced nurses on break) that led to my still current med combo! 😅

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@BrainAblaze “Oh, just med fatigue.” Then, the air exits from their lungs like I announced I was diagnosed w/ a terminal illness…😒

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@BrainAblaze @kaileyh175 was one of the earliest people to show me exactly that!

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@BrainAblaze @seizedandshaken I don’t vent. I let folks know about my triggers & nasal rescue spray & that I respond when med side effects let me be awake. The “venting” happens post seizure when I cry & cuss myself out asking if people still love me. 🤬🥴😂😅

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@YesAnastasia13 @DiaryofaSickGrl Had an ER doc tell me to “Get over your seizures like Julius Caesar did.” as I was in the process of finding new meds & going to the ER frequently due to my status epilepticus.

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@BrainAblaze One failed med at a time! 😅🥴

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@BrainAblaze Everything else is okay compared to the post seizure migraine.

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@BrainAblaze Tolerance is my biggest trigger!

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@BrainAblaze I don’t sit near vents or around loud noises anymore with reflex seizures as an adult. I’ve known since I was little that I can’t drink.