Catriona Parfitt

Wildlife Photographer and Filmmaker, Biologist, occasional Artist

[Taylor Lorenz @TaylorLorenz]

“If you look at a condition like [ME/CFS], it is considered the most disabling disease of all diseases. When you look at the disease chart, it’s completely at the bottom, worse than cancer. The amount of funding for this condition, it’s pathetic” https://t.co/zqypc6IX3i

[Taylor Lorenz @TaylorLorenz]

If the secret to beating cancer was celery juice or the secret to curing Covid organ damage was mindset healing or the secret to preventing measles was beef tallow I PROMISE u scientists would be on board. U wouldn’t be hearing about it from a religion professor or course seller!

[Ramin Nasibov @RaminNasibov]

Each circle has a different story

[Carole Bruce @CaroleBruce17]

One of James Strazza’s final poems. released today for #MEAwarenessWeek by his mother Gale Warden. James, a musician and poet, died last week, he had suffered from severe #ME since 2019.

[Danielle Beckman @DaniBeckman]

Today, hundreds of people went to the streets in over 40 cities (!!) in Germany to demand better support for Myalgic encephalomyelitis (ME/CFS) patients.
One of the reasons I chose Germany as my new home.
Very proud of you my German friends.
#LiegendDemo #MECFS

[Carole Bruce @CaroleBruce17]

Isla aged 10 has #ME and because a group of people decided decades ago that hers was not a valid illness she thinks she is going to die. These people continue to wage war on all people with ME by consistently denying its existence. It’s criminal behaviour.

[BBC Wales News @BBCWalesNews]

Our son loved being outdoors - now ME means he can't walk or talk https://t.co/qbcoT4gWar

[Rhi @rhirhiarhii]

A group of my very dear friends came together to make this post, thank you to @alexandrite113 & Fran I’m not sure you’re on Twitter, and everyone who contributed. #longcovidawareness #longcovid

[Catriona Parfitt @PCatriona]

@mark_bonnar Thank you so much for this Mark!

[Catriona Parfitt @PCatriona]

@tessamunt @TomKindlon Thank you Tessa!

[Catriona Parfitt @PCatriona]

@KingsCollegeLon @WesselyS @KingsIoPPN That someone who has caused such depths of harm to be knighted is beyond shameful, as is the fact you’re celebrating him never mind employing him

[Catriona Parfitt @PCatriona]

@tessamunt @wesstreeting @AshleyDalton_MP Thank you so much Tessa!

[#ThereForME @ThereForME_UK]

It’s official: the @LibDems are #ThereForME ! 🧡

Incredible to see every single one of the Lib Dems’ 72 MPs signing this letter led by @tessamunt ahead of World ME Day.

They’ve joined our call to @wesstreeting and @AshleyDalton_MP to #FundThePlan

[Dr Ben Marsh 💙 @bendymarsh]

“The evidence is now so strong that #MECFS is a serious multisystem neuro-immune disease that it becomes intellectually embarrassing for anyone to continue to consider it to be a psychosomatic disorder.”
Exceptional letter by Countess of Mar in 2015, just as relevant today

[Matthew Todd 🌏🔥 @MrMatthewTodd]

‘We are going to lose everything’
NASA climate scientist Peter Kalmus (@ClimateHuman )

[chantzy @chantz_y]

Regular reminder that society is choosing to be constantly ill due to normalcy bias, capitalism & political lethargy. We know how to prevent all these viruses

[Adam @ABrokenBattery]

30 yrs have been wasted on a psychological approach to #MECFS that led to stigma, abuse, and serious harm. It was abandoned by NICE due to bad science.

@wesstreeting @AshleyDalton_MP

The Delivery Plan is an opportunity to undo the damage and research treatments

#FundThePlan

[Carole Bruce @CaroleBruce17]

#ME

[Catriona Parfitt @PCatriona]

@SalvMattera From my experience significantly worsened, mild to severe and added co-morbidities