Heading back to London tomorrow to see our daughter’s consultant. It’s an expensive route we’ve gone down but the NHS are not helping 😔
Hopefully in the years / decades other families battling @PANSPANDASUK will have better support via the National Health Service
Excited to be able announce we are planning to take on our first ever student work on PANS . We have £10 K from donations to start us off but require £25K per year to run the project: fees, living expenses and basic lab costs. More information to follow ! @PANSPANDASUK#PANs