Charlene

Carpe Diem has always been my favourite phrase, until 2021 I didn’t realise how fitting this quote would become for my family.
#PANDAS-awareness

[Charlene @pebblescw]

After the last month of what I can only describe as hell, with all symptoms increasing.OCD, Arfid, rages, insomnia, anxiety, isolation, fatigue. Seeing this in the news has helped bring us hope again and reminds me it’s not just my child that is suffering. 🥲 #PansPandasHour

[Charlene @pebblescw]

@SelaineSaxby @24HourSwim @PandasPans Thank you!! ❤️

[Charlene @pebblescw]

@wendychambLD I really hope your efforts are not ignored and the children who are suffering in silence get the help they desperately need, without this constant battle. A huge thank you from us, maybe one day a discussion in parliament isn’t needed and children get the treatment they deserve.

[Joanne Holloway @CharmingAngelCo]

Often when you have child with #Pans #Pandas you live life in lockdown. Horrific symptoms make leaving house seem impossible 2 child affected. They miss out on so much & lose childhood, family, friends & education. Sad fact is it really doesn't have 2 be this way! #PansPandasHour

[Charlene @pebblescw]

A child falls over and hurts their arm, an X-ray is done within 8 hours and treatment is given! A child all of a sudden screams in agony their head hurts, they can’t talk properly, they are sent home, a CAHMS number is given without any tests, Why?!!
#PansPandashour

[Charlene @pebblescw]

Why are our children still in a position where they are in physical and mental pain and still being dismissed 😢
Our children matter #PansPandasHour

[Kathryn Gillett @kathryn_gillett]

#panspandashour raising awareness about these awful medical conditions, where immune systems form a misdirected attack on the brain instead of towards bacteria, virus, allergy etc.

https://t.co/aMQz0vbZMj

[Charlene @pebblescw]

@Ruthedwardsmp2

[Charlene @pebblescw]

@melpayne77 😩❤️

[Mel Payne @melpayne77]

This should not be the way it is 🥺 #PANDAS has stolen 7 years of my daughter's life. Like many other children she has endured things that would bring most adults to their knees. Why are we still fighting to be heard? #panspandashour #panspandasuk

[Hope @hopestardust20]

Thank you @Katie5news for your ongoing support.
Sadly many young people are finding a long delay in diagnosis/treatment is causing symptoms to become more entrenched as if they’re ‘Stuck’ 😢 #Ocd @DrSarahJarvis @JeremyVineOn5 @theJeremyVine

[Joanne Holloway @CharmingAngelCo]

Educators please be aware you could make such a difference to a child’s life with understanding of conditions #Pans #Pandas #SEND #edutwitter #education #SENDTwitter #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

Greater general #Awareness #Understanding needed of conditions #Pans caused by misdirected immune response to an unknown trigger and #Pandas triggered by strep A resulting in inflammation in the brain. Not rare!Please RT to bring recognition💚#bge #KindnessMatters #PansPandasHour

[Joanne Holloway @CharmingAngelCo]

Often when you have child with #Pans #Pandas you live life in lockdown. Horrific symptoms make leaving house seem impossible 2 child affected. They miss out on so much & lose childhood, family, friends & education. Sad fact is it really doesn't have 2 be this way! #PansPandasHour

[TinaC @TinaCoope]

@FreshStartEdu @Hopesaxons @PandasPans Absolutely - currently some children with #PANS and #PANDAS are losing their baseline. Much more #educational #research needs to be done.

[Jill Foster @JournalistJill]

A VERY long shot…but if anyone was on flight BA177 from Heathrow to JFK yesterday (Tues 4 April) at 1.10pm and landing at 3.30pm and found this little fella, there’s a distraught little boy who would love to be reunited with him. Get in touch if you can help. Thanks

[Charlene @pebblescw]

@CharmingAngelCo We had a gp visit us this week! I appreciated her taking her time to come and see my daughter. What I didn’t appreciate was that she told my daughter that without her education she wouldn’t have a future. Really! Like she think about this everyday 👍

[Charlene @pebblescw]

@RuudGrethe One day 🙏🙏