@comcast@Xfinity announces nationwide data caps on home internet service. An appalling decision during a once in a lifetime pandemic where people most dependent on internet for employment, eduction and entertainment. Feel free to retweet to let others know.
@sarahcud@MasriAhmadMD@cardiooncCMB@maz_hanna@MarthaGrogan1@Ron_Witteles@Amyloidosis_ARC Similar case: 70 yo, on tafamadis for 1 year (outside diagnosis). 2nd opinion. PYP scan grade II, H/CL 1.3. Repeat echo by me: Not classic amyloid. Endo bx negative. I stopped tafamadis. Remember, PYP specific only when clinical picture suggests TTR (and light chain -)
@ProthenaCorp ending the Long-term extension phase of the prx004 study effective immediately to move forward with their next trials despite strong objections from several investigators. This means patients doing well on the drug will no longer receive it. Disappointing.
#Pfizer announced today they are terminating their free genetic screening program for TTR amyloid /THAOS in 3 weeks. Another punch in the gut for our patients. Fortunately, other companies are being more considerate.
@MarthaGrogan1 Also seeing more and more “positive” PYP scans from outside labs that aren’t really diagnostic. Blood pool etc. Need to be careful with standardizing PYP interpretations.