PMG Awareness Organization

The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with PMG.

[PMG Awareness Organization @PMGAwarenessOrg]

Thank you to all of our friends, families, supporters, and volunteers who come together every year to make this event a success. We are truly grateful.

TOGETHER, step by step, we will unlock the mysteries of PMG! 🏅 Register today!!

https://t.co/v1C1egSr9a

[PMG Awareness Organization @PMGAwarenessOrg]

We are excited to announce our next PMG coffee chat! Join us on November 9th at 1:00 pm EST. We welcome you to connect with other families in a safe environment.
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To access the registration link, you must be a member of our official Facebook group.
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Please join us!

[PMG Awareness Organization @PMGAwarenessOrg]

From all of us at the PMG Awareness Organization, a very happy birthday to all those with PMG who were born in October!

Did you know we have a birthday program for anyone with PMG?

To sign up: https://t.co/27VplX9yCE

#pmgawareness #happybirthday

[PMG Awareness Organization @PMGAwarenessOrg]

Today is World Cerebral Palsy Day.⁣

⁣CP is a group of disorders that affect a person's ability to move and maintain balance and posture. CP is the most common motor disability in childhood. Many individuals with PMG also have a diagnosis of CP.
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#pmgawareness #worldcpday

[PMG Awareness Organization @PMGAwarenessOrg]

For the past 3 years, we have had the honor of being Top-Rated on GreatNonprofits. To continue for a 4th straight year, we need your help! We need just 9 more reviews. It’s easy and takes less than 5 minutes!

To rate and review: https://t.co/LSWpTdJMMx

#pmgawareness

[PMG Awareness Organization @PMGAwarenessOrg]

You can register or donate here: https://t.co/QUNd7vkXVO

[PMG Awareness Organization @PMGAwarenessOrg]

TOMORROW is the cutoff to receive your race shirts BEFORE the virtual race begins on October 14th! Any registrations or orders placed after tomorrow night will be shipped at the conclusion of the race. Congratulations to our Top Teams so far!! 👏 Woohoo! Will they hold the lead?

[PMG Awareness Organization @PMGAwarenessOrg]

🌟1st place - 3 nights at Renaissance Hotel during 2024 PMGA convention or $500 Amazon gift card

🌟2nd place - 2 nights at Renaissance Hotel during 2024 PMGA convention or $300 Amazon GC

🌟3rd place - 1 night at Renaissance Hotel during 2024 PMGA convention or $200 Amazon GC

[PMG Awareness Organization @PMGAwarenessOrg]

Did you know that by supporting "The Sky���s the Limit" Virtual Race, you are helping PMGA provide our families with the biennial Family Convention?

The next convention will be in Columbus, Ohio in July 2024. Consider donating to this wonderful cause!

https://t.co/QUNd7vkXVO

[PMG Awareness Organization @PMGAwarenessOrg]

You are still able to register after September 23rd, however, you will not receive any merchandise until after the race ends.

Please join us for PMGA's biggest fundraiser of the year! Let's make this our best event yet!

https://t.co/QUNd7vkXVO

[PMG Awareness Organization @PMGAwarenessOrg]

There is just one week left for early registration for this year's virtual race - 𝐓𝐡𝐞 𝐒𝐤𝐲'𝐬 𝐭𝐡𝐞 𝐋𝐢𝐦𝐢𝐭!

If you would like to receive your t-shirts and medals before the virtual race begins on October 14th, the first round of registration ends on September 23rd.

[PMG Awareness Organization @PMGAwarenessOrg]

From all of us at the PMG Awareness Organization, a very happy birthday to all those with PMG who were born in September!

Did you know we have a birthday program for anyone with PMG?

To sign up, please visit: https://t.co/27VplX9yCE

#pmgawareness #happybirthday

[PMG Awareness Organization @PMGAwarenessOrg]

In remembrance and honor of the lives lost on September 11, 2001. We will never forget.

[PMG Awareness Organization @PMGAwarenessOrg]

Once you are registered, you will receive an email with instructions on how to join us via Zoom. ⁣
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Please come as you are and join us on September 16th. We can't wait to see you there! ⁣
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#pmgawareness

[PMG Awareness Organization @PMGAwarenessOrg]

After taking the summer off, we are very excited to announce our next PMG coffee chat! Please join us on September 16th at 1:00 pm (EST)/ 10:00 am (PST). While we have no formal agenda for this chat, our theme for this chat will be back to school.

[PMG Awareness Organization @PMGAwarenessOrg]

To attend, you must register in advance. To access the registration link, you must be a member of our organization's official Facebook group. The group can be found here: https://t.co/DNJt8MHXLG

[PMG Awareness Organization @PMGAwarenessOrg]

Happy Labor Day!⁣
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The PMG Awareness Organization sends a very big thank you to all those who work hard and are an inspiration to us all.⁣
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#pmgawareness

[PMG Awareness Organization @PMGAwarenessOrg]

Thank you to all of our friends, families, supporters, and volunteers who come together every year to make this event a success. We are truly grateful.

TOGETHER, step by step, we will unlock the mysteries of PMG! 🏅 Register today!!

https://t.co/v1C1egSr9a

[PMG Awareness Organization @PMGAwarenessOrg]

The 2023 Virtual Race - “The Sky’s the Limit” is kicking off!! 🥳💪🏻🙌🏻

👟WHY a Virtual Race?
The Virtual Race allows participants to unite by walking all over the world! We may be far apart, but we are walking together.

[PMG Awareness Organization @PMGAwarenessOrg]

👟WHY should I donate?
The organization relies on your support to help fulfill our mission. 100% of all net proceeds raised from the Virtual Run/Walk event will go directly to the organization.