Join Community Connections 💬
A supportive virtual space for people living with #FCS & caregivers, guided by rare disease psychologist Dr. Al Freedman.
🗓 May 13, 2026 | 6–7:30 PM ET
Connect, share, or just listen.
https://t.co/RK8nh0B928
Thanks to @ionispharma & @ArrowheadPharma
Heading to Atlanta for the American Medical Informatics Association annual symposium and will present our work on machine learning models predicting the needs of ICU patients tomorrow. #Amia2025
We’re thrilled our medicine for familial chylomicronemia syndrome (FCS) has been shortlisted for the @Citeline 2025 #ScripAwards in the Best New Drug Award category. We are honored to be recognized! https://t.co/aNSMUTuE7y #LivingwithFCS#RareDisease
Severe hypertriglyceridemia (sHTG) occurs when triglycerides exceed 500 mg/dL, posing risks such as acute pancreatitis and cardiovascular disease. HCPs, learn more: https://t.co/tluJrF6xSp
Hey @daveasprey@bpnutrition
— did you quietly change your MCT oil formula? 🤔
Old label: 14g C8+C10 per 14g (100%)
New label: 7.7g (~55%)
That leaves almost half the fat from an unknown source.
Consumers deserve #FoodTransparency. #MCTOil