PPALS

(PPALS) is a non-profit organization committed to supporting the function of Patient Advocacy within the biotech and pharmaceutical industries.

[PPALS @PPALSorg]

For more info on @PPALSorg check out our website https://t.co/fkKD4Q5CGB and like us on Facebook https://t.co/9BjqKJ7hpf #RareDisease

[Engage Health Inc. @EngageHealthInc]

Thank you to our own Austin Letcher for your presentation at PPALS! It is an honor to meet and collaborate others passionate about rare disease advocacy!

@PPALSorg @amicusrx1

[Jean Campbell @JFCConsultants]

#PPALSPACT2023 @PPALSorg case study discussion with PAOs, biotech & pharma attendees. Lots of good conversations @SanfordCoRDS @jgersh1115 @bwuebbels @DMLaGreca @RobertTomaino

[Jean Campbell @JFCConsultants]

#PPALSPACT2023 @SanfordBenF speaking to Industry Intermediate class at Day 2 of @PPALSorg PACT course at @SanfordResearch Great discussion on appropriate interactions with #rarediseasepatientadvocacyorganizations @BarbWuebbels @jgersh1115 @DMLaGreca

[Jean Campbell @JFCConsultants]

#PPALSPACT2023 @DrDavidPearce discussion on @SanfordResearch on Day 1 of @PPALSorg PACT course. @RobertTomaino @SanfordCoRDS @jgersh1115 @DMLaGreca @BarbWuebbels #patientadvocacyinlifesciences

[PPALS @PPALSorg]

@PPALSorg is pleased to announce the return of PPALS Presents! The next installment of the webinar series will feature a discussion about the best “Pathways for Seeking Community Insights.” Join us online Thursday, March 30th at 4pm (EST)
#patientadvocacy
https://t.co/RqyQ4yKa7W

[PPALS @PPALSorg]

@PPALSorg and @SanfordResearch are pleased to announce that the registration link for the 2023 Patient Advocacy Certificate Training (PACT) course is live! The course will take place at Sanford Research Institute campus in person from May 8th-11th.
https://t.co/fdOL5jRoAo]

[PPALS @PPALSorg]

PPALS November Newsletter
https://t.co/HcDPEKWE04
#patientadvocacy #patientadvocate

[Jean Campbell @JFCConsultants]

Mark Sept 27 for a must attend @_OurOdyssey_ special topic meetup. Thanks @Srotberg15 for being on the program! @PPALSorg @SanfordCoRDS @RobertTomaino @HDYOFeed @EveryLifeOrg @RareAdvocates @CystinosisCRN @livinlavidalopo @One_Rare_ @UpliftingAth #RareDisease #chronicillness

[PPALS @PPALSorg]

Thanks Keri McDonough from @SyneosHealth for the @PPALSorg shoutout in her view of @DynamicGlobalEv Chief Patient Officer summit which took place in July. Not only did it feature several PPALS members and PACT faculty, but the meeting was focused on #PatientAdvocacy!

[Our Odyssey @_OurOdyssey_]

Young adults (18-35) impacted by rare or chronic conditions
👉Join us!
@_OurOdyssey_ hosts free virtual meetups!
The next one is Sunday August 28th 4 - 5pm EST
Learn more & sign up here: https://t.co/4Tbq4AGdSa…

#RareDisease #chronicillness

[Engage Health Inc. @EngageHealthInc]

Lots of learning, connecting and wonderful discussions were had at #PACT2022. Thank you @PPALSorg & @SanfordCoRDS for a great week!

[Jean Campbell @JFCConsultants]

"I am so glad we had this time together!" A fabulous group of Patient Advocates at the end of the @SanfordCoRDS @PPALSorg #PACT2022 Great energy & discussions! Thank you to all for a stellar experience! @jgersh1115 @BarbWuebbels @RobertTomaino @SanfordBenF

[Jean Campbell @JFCConsultants]

It's @michelerhee between 2 Robs @RobertTomaino & @RobLong47 moderating Findi g the Common Ground for @SanfordCoRDS @PPALSorg #PACT2022 Really good conversation! @UpliftingAth @jgersh1115 @BarbWuebbels @DMLaGreca Thanks for your enthusiasm!

[PPALS @PPALSorg]

Thank you Sanford/PPALS #PACT2022 Attendees and Faculty. It was a great week of discussions and learning from each other! Go forth and Collaborate! #patientadvocacyinlifesciences #patientadvocacy
@PPALSorg @SanfordCoRDS @jgersh1115 @BarbWuebbels @JFCConsultants #PACT2022

[Jean Campbell @JFCConsultants]

@michelerhee leading #patientadvocacyinlifesciences w/ colleagues working in #patientadvocacy function about challenges! @PPALSorg @SanfordCoRDS @jgersh1115 @BarbWuebbels Great conversation!!!

[team4travis @team4travis]

What an exciting week @Sanford Health & Sanford Research Institute learning, connecting and advancing as Rare Disease Advocates. Thanks to PPALS Founding Board Members, PPALS Team & the Sanford team for hosting us. #PPALS #PACT2022 @Sanford @PPALSorg

[PPALS @PPALSorg]

Thanks @JFCConsultants and Rob Long
@UpliftingAth
sharing the best practices of working with Non Profit Organizations
@SanfordCoRDS

@PPALSorg

@jgersh1115

@BarbWuebbels

@teaminspire

@RobertTomaino
#rarediseases #patientadvocacyinlifesciences #PACT2022 #PPALS

[Jean Campbell @JFCConsultants]

Thanks Rob Long @UpliftingAth sharing how they work with Industry, PAOs and other stakeholders. @SanfordCoRDS @PPALSorg @jgersh1115 @BarbWuebbels @teaminspire @RobertTomaino @DMLaGreca #rarediseases #patientadvocacyinlifesciences #PACT2022

[Jean Campbell @JFCConsultants]

Day 3 at @SanfordCoRDS @PPALSorg #PACT2022 Discussions on Working with Non-Profits, CSuite, Collaboration with Academia, Nonprofit, Industry & Government, and Finding Our Common Ground. @jgersh1115 @BarbWuebbels @RobertTomaino IT HAS BEEN TERRIFIC!!

[Jean Campbell @JFCConsultants]

Thanks Jamie Ring for the History of Patient Advocacy at @SanfordCoRDS @PPALSorg #PACT2022 It was indepth, intriguing & Informative. Having historical perspective gives a stronger base for the #patientadvocacyinlifesciences function. @jgersh1115 @BarbWuebbels @BarbWuebbels