team4travis

No child should die from Isolated Congenital Asplenia 501(c)3 nonprofit corporation #team4travis #aspleniaresearch ⠀⠀⠀⠀⠀⠀⠀⠀⠀

[team4travis @team4travis]

@Tbone7219 As a widow, I surround you with love. Your pain is so fresh. You're right, life will never be the same but you will find ways to honor him and keep your love alive. Peace dear one..dm if you need a shoulder

[team4travis @team4travis]

Wanna take in the fast-paced action of Indoor Football? Wanna support TEAM 4 Travis' mission to end child death from Isolated Congenital Asplenia? You can do both Sat April 12 as your Arizona Rattlers battle with the San Antonio Gunslingers! Scan the QR code to buy tix today

[team4travis @team4travis]

On Rare Disease Day 2025, our zebra stripes are orange, Travis' favorite color. Grateful for meetings w/Congressional staffers to discuss legislative support for impactful research at NIH, quicker pathways to diagnostics, clinical trials & ultimately, saving children! #RareDC2025

[team4travis @team4travis]

Excited to be back for #RareDC2025. Renewing old friendships, forging new connections and most importantly, making our voices heard to our members of Congress to advocate for better diagnostics, drug therapies and new advances which will benefit our entire community

[team4travis @team4travis]

As we gather with family & friends this Christmas, we are grateful for all who believe in our mission, walk with us to find early detection for ICA and help spread Travis' legacy of love, energy and curiosity. To great strides forward in 2025!

[team4travis @team4travis]

@JudgeJeanine Hope you had a wonderful birthday Judge!

[team4travis @team4travis]

All gave some, some gave all. On this Memorial Day, we pause to thank, honor and remember all the service men and women who paid the ultimate sacrifice for our nation.

[team4travis @team4travis]

@andreharris89 Turn them on to Karyn White & Jody Watley while you're at it

[team4travis @team4travis]

@andreharris89 Happiest of birthdays to a fabulous friend and fierce rare disease advocate!

[team4travis @team4travis]

Honored to be in the room for the 1st ever White House Office of Science and Technology Policy Rare Disease Forum
@EveryLifeOrg #RareDC2024

[team4travis @team4travis]

Before kicking off your New Year's Celebration, check out our 4th Quarter Newsletter. Stay safe tonight and have a happy, healthy and amazing 2024! https://t.co/z25rRD0PsJ

[team4travis @team4travis]

Reflecting on the successes of 2023, and looking ahead to all we want to accomplish in 2024, we are so grateful for each and every one of you who supported us along the way! Happiest of holidays!

[team4travis @team4travis]

Glad to partner with The Everylife Foundation for Rare Diseases to join in 2023's year-end events, including the State Advocacy Workshop, Rare Voice Awards and Community Congress. Looking forward to driving change in policy for rare patients & families in 2024!

[team4travis @team4travis]

Everyone at T.E.A.M. 4 Travis sends our best wishes to you & your family for a Thanksgiving season of joy, abundance, and blessings.

We're thankful to continue sharing Travis’ story and our mission globally. We couldn't do it without your generous support.

[Barby Ingle Official @BarbyIngle]

You've Been Pricked to share me in support for #NERVEmber - #GoOrange #iPain

@JodiOrvisDragon @teamfibro @Looms4Lupus @team4travis @duffynyc @APainPrincess @HollyMeschko @baileyr93853367 @ches_thompson @eileendove910

Please pass it on to spread awareness about #NERVEPain for #NERVEPainAwareness month

#RSD #CRPS #Neuropathy #TN #CPS #AlgoNeuroDystrophy

*Like a Halloween Boo or a Christmas HoHo - pass it on!

[team4travis @team4travis]

@rdii_org 💯 agree! And, rare disease parents & parent caregivers also suffer depression due to isolation, frustration, chasing specialists and treatments, financial burdens and grief for lost dreams of what their child might have done if not for the DX or death.

[team4travis @team4travis]

I'm honored to discuss global rare disease advocacy at @IndoUSRare Bridging RARE Summit 2023. Sharing insights to transform the lives of rare disease patients globally.
Please visit https://t.co/T6P4oPdUlF
#IndoUSrare #BridgingRARESummit #RareDisease#bridge4rare #bridgingrare

[team4travis @team4travis]

It's been 2 weeks since Tee It Up to Fight Asplenia & we're over the moon! It was a day full of unbridled joy, delicious food and a sense of community - all things Travis embraced wholeheartedly. Enjoy this video and then visit https://t.co/bwBlZHhuni Photo Gallery for more pics

[team4travis @team4travis]

The countdown is on! The 3rd Annual Tee It Up to Fight Asplenia TOPGOLF Tournament is just a few hours away! Get ready for a day of non-stop fun and we can't wait to see you there!

[team4travis @team4travis]

0ur hearts are filled with gratitude for Valley Injury Law & attorney Travis Meltzer, a 2023 Gift Bag Sponsor. Thanks to the generosity of all our Gift Bag Sponsors, attendees of the 3rd Annual Tee It Up to Fight Asplenia receive a fun gift bag filled with some cool swag.