Rare Disease Innovations Institute

RDII is a non-profit organization focused on education, engagement and to equip the rare disease community

[Rare Disease Innovations Institute @rdii_org]

Reasons why rare disease patients face depression/anxiety.

[Rare Disease Innovations Institute @rdii_org]

In a new @reflectornews opinion, RDII founder and pres. Tara Britt urges @SenTedBuddNC, @SenThomTillis & Congress to reform the role that #PBMs play in driving up health care costs for North Carolina patients. Read more: https://t.co/Dvt7TDKWgj

[Rare Disease Innovations Institute @rdii_org]

Here are a few reasons why rare disease caregivers face depression and/or anxiety.

[Rare Disease Innovations Institute @rdii_org]

Interested in starting a Rare Disease Advisory Council? We can help! Message us for details.

[Rare Disease Innovations Institute @rdii_org]

Did you know our CEO, Tara Britt, also does consulting on rare disease policy? Message us for more details! #RareDiseasePolicy #rarediseaseconsulting

[Rare Disease Innovations Institute @rdii_org]

This article from Psychology Today is a couple of years old, but it still resonates today. https://t.co/OKyE9zlnBP

[Rare Disease Innovations Institute @rdii_org]

What a great start to Seattle Children’s Rare Fair. Powerful!

[Rare Disease Innovations Institute @rdii_org]

We don't want to let the month of May end without recognizing National Foster Care Month. Thank you to all of the foster families who take in children with rare diseases and love them like their own. We appreciate you!

[Rare Disease Innovations Institute @rdii_org]

Congrats to IGAN for 20 years of leadership for the IgA Nephropathy community!

[Rare Disease Innovations Institute @rdii_org]

We're excited to be participating in the Seattle Rare Disease Fair!

Payer Forum: May 30
Seattle Rare Disease Fair: May 31 to June 1

RSVP today for FREE. These events will have a lots of great speakers, discussions and advocacy opportunities!

https://t.co/NDMmWWgi2Z

[Rare Disease Innovations Institute @rdii_org]

#DNADay24 celebrates the power of genetics and genomics. Visit https://t.co/eExKaQAeCV to see what activities are happening near you!!

[Rare Disease Innovations Institute @rdii_org]

Thank you to all of the volunteers in our rare communities!

[Rare Disease Innovations Institute @rdii_org]

Thank goodness for siblings!

[Rare Disease Innovations Institute @rdii_org]

Today is World Autism Awareness Day. Learn more at https://t.co/627WqfB1Ku

[Rare Disease Innovations Institute @rdii_org]

Great webinar explaining prescription drug affordability boards! https://t.co/SY8vBdTQKE

[Rare Disease Innovations Institute @rdii_org]

Recognizing International Women's Day!

[Rare Disease Innovations Institute @rdii_org]

Today is Rare Disease Awareness Day. Did you know that 50% of rare diseases typically occur in children? #rarediseaseawareness

[Rare Disease Innovations Institute @rdii_org]

Globally, 300M+ people live with a rare disease. Of those affected, 72% have genetic diseases. #rarediseaseawareness

[Rare Disease Innovations Institute @rdii_org]

80% of rare diseases are genetic in origin, and thus are present throughout a person's life - even if symptoms do not immediately appear. #rarediseaseawareness

[Rare Disease Innovations Institute @rdii_org]

Approximately 40% of rare disease patients are misdiagnosed more than once. We need to do better! #rarediseaseawareness