Project FAVA

Project FAVA: nonprofit working to drive medical research to treat the painful fibro adipose vascular anomaly, a rare disease connected to the PIK3CA mutation.

[Project FAVA @projectfava]

@jake_heimlicher @UCLAFootball @UpliftingAth A million thanks...fight FAVA...Go bruins!

[Guillaume Canaud (MD, PhD) @CanaudLab]

Fantastic news today for patients with PIK3CA related disorders (PROS)! Alpelisib obtained FDA approval. This is for us a fantastic achievement. We started in 2016, identified alpelisib (BYL719) has a promising compound and developed a mouse model. 1/n
https://t.co/gI7HlG26yl

[Project FAVA @projectfava]

What do you know about FAVA? Click to find out what you should know from the real experts: those suffering from it.
#RareDisease #RareDiseaseDay @rarediseaseday @rarediseasesint @RareDiseases @GlobalGenes

[Project FAVA @projectfava]

https://t.co/jPsMmBirUg #RareDiseaseDay love for those living with FAVA and other PROS conditions

[C. van der Vleuten @HecovanNijmegen]

Sirolimus Leads to Rapid Improvement in Fibroadipose Vascular Anomalies @ISSVA_org #FAVA

[Project FAVA @projectfava]

@CanaudLab @frsFNRS Congratulations, and thank you for your dedication!

[National Organization for Rare Disorders (NORD) @RareDiseases]

NORD is proud to announce the launch of the COVID-19 Critical Relief Program for #raredisease community impacted by #COVID19. The program supports patients & families facing financial challenges & helps with essential non-medical expenses. Read more: https://t.co/p7e47RQyAa

[Project FAVA @projectfava]

Project FAVA https://t.co/lt6GFNd6is via @YouTube

[Project FAVA @projectfava]

We believe in a #PainFree future for all people living with FAVA. Do you? https://t.co/p35YLZrANq