Everybody, thank you from the bottom of our hearts for your prayers.
We just received our fifth normal brain scan.
Hey FDA: Unleash ANKTIVA and natural killer cell therapy nationwide. Patients are waiting.
MRI BRAIN WO/W CONTRAST 7/31/2026 7:57 PM CLINICAL INDICATION: Neoplasm of the temporal lobe on the right side COMPARISON: None.
TECHNICAL FACTORS: Sagittal T1, Axial DWI, Axial FLAIR, Axial T2, Axial SWI, Axial T1 MPRAGE Post, Sagittal MPR post, Coronal MPR post IMAGING MEDICATIONS: gadobutrol (GADAVIST) 10 mmol/10 mL (1 mmol/mL) injection 10 mL FINDINGS:
Lesion assessment: Prior right temporal craniotomy with residual right temporal convexity dural enhancement. The right temporal resection cavity is again noted.
There was no change in the appearance compared with the prior examination VENTRICULAR SYSTEM: Normal in size and morphology. EXTRAAXIAL SPACES/CORTICAL SULCI: Normal in size and morphology.
MIDLINE SHIFT: None
CEREBRAL PARENCHYMA: No acute infarct.
WHITE MATTER: Normal
HEMORRHAGE: Hemosiderin staining subjacent to craniotomy site.
POSTERIOR FOSSA: Normal
CONTRAST ENHANCEMENT: As above CALVARIUM/SKULL BASE/SCALP: As above VASCULAR SYSTEM: Normal
VISUALIZED PARANASAL SINUSES/MASTOID AIR CELLS: Normal VISUALIZED ORBITS: Normal VISUALIZED UPPER CERVICAL SPINE: Normal
SELLA AND SUPRASELLAR STRUCTURES: Normal
@bullishbruk@DrPatrick@US_FDA
Last week I shared how anxious I was waiting for Braelyn’s first MRI after proton radiation.
Today, our prayers were answered.
Her MRI is stable compared to the MRI before radiation, with no evidence of progression. Even more encouraging, the residual enhancing lesion is smaller and shows less enhancement than before. The new changes seen on the scan are favored to represent treatment effects from the recent proton radiation, not tumor growth.
Thank you to everyone who prayed, encouraged us, and carried us through the waiting. We truly believe your prayers matter.
Next stop: London for the DCVax induction phase. One MRI at a time. ❤️🙏
#DCvaxForBraelyn $NWBO
My name is Stephen Martin. I am trying to get access to a nasal spray for this three year old boy, Brody DeVault.
He has Creatine Transporter Deficiency. The creatine in his bloodstream does not make its way to his brain. Without treatment, he will live a life of intellectual disability, and probably die young from a seizure.
There is a treatment which has finished Phase 1 clinical trials which may help him. I have spoken to the manufacturer, they will provide it to him under Montana's new law SB535.
But only if we can get them official promises from HHS that they will not be punished for treating a patient under a state law.
I have a meeting with the FDA on the 18th. Right now the single thing which most increases the likelihood of getting Brody treatment, is making sure that President Trump becomes aware of this before that meeting.
I'm posting this in the hopes that I can bring this to the attention of people who can, in turn, bring this to the attention of President Trump. The meeting is in 6 days.
Thank you for your attention to this matter!
It's an honor to print the words of @adamamin honoring his friend and partner Stacey King. I got Adam's "rough" draft right before I left and it needed almost no editing. He wrote from the heart.
https://t.co/GDjlPrYfew
We’re living the Right-to-Try problem in real time.
My 18-year-old daughter Braelyn and I are currently in London so she can receive DCVax-L, an immunotherapy developed in the United States. Despite being pioneered by an American neurosurgeon and showing encouraging long-term survival data, we could not access it in the United States.
Instead, we’re paying hundreds of thousands of dollars, traveling across the Atlantic, and spending weeks away from home to pursue a treatment that originated in our own country.
Patients facing terminal illnesses deserve meaningful access to promising therapies—not just in theory, but in practice.
I’m calling on Congress to stop the Administration’s newest policy forcing many blood cancer patients to work or lose their health coverage. Take action now. https://t.co/2oxVZDTJ0J
Andrew and I are in Washington, D.C. today, where I had the honor of testifying before the FDA on behalf of cancer patients everywhere.
We’re fighting to bring #ANKTIVA and natural killer (NK) cell therapies into the spotlight, giving hope and new options to those who need them most.
Please watch the testimony. I hope it resonates with you.
Together, we’re pushing for real progress. @bullishbruk@DrPatrick