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PierreRobinSequence
@prsfound
Pierre Robin Sequence Foundation is a Registered non profit that has been established to support effected with PRS (126-590 NPO) FB/PRSFoundation
Cape Town
Joined August 2012
164
Following
145
Followers
1K
Posts
Pinned Tweet
PierreRobinSequence
@prsfound
over 11 years ago
Please Share.
#PRSawareness
#PRS
prsfound
retweeted
Bertrand Might
@bertrandmight
over 9 years ago
#Empowered
#RareDisease
advocates meeting the amazing
@nickdawson
at
#WhiteHouse
.
#NORDSummit
@HopkinsMedicine
@RareDiseases
@StanfordMedX
PierreRobinSequence
@prsfound
over 9 years ago
Attended RareX conference today... Cant wait for tomorrow.
#RareDisease
#RareX
PierreRobinSequence
@prsfound
almost 11 years ago
http://t.co/bKubVHq2Cu
Who to follow
PC Project
@Pachyonychia
Fighting for a Cure. Connecting and Helping Patients. Empowering Research.
Degos Disease Foundation
@degosdisease
V. rare orphan vasculopathy aka malignant atrophic papulosis with pathognomonic lesions. Biopsy confirms diagnosis. Support Network for patients, carers, medics
GENPHARM
@genpharmmena
Bringing #Cures to MENAT Patients. Commit. Connect. Cure
PierreRobinSequence
@prsfound
over 11 years ago
http://t.co/h0ns1QMucx LOOK
PierreRobinSequence
@prsfound
over 11 years ago
http://t.co/cKRK3G7h08 Read our latest newsletter featuring cleft palate repair
PierreRobinSequence
@prsfound
over 11 years ago
http://t.co/WnNsngeqwd
PierreRobinSequence
@prsfound
over 11 years ago
Check out PRS Ambassadors! Available for the next 22 days via @Teespring: http://t.co/Kfd7hJN105
PierreRobinSequence
@prsfound
over 11 years ago
Create awareness for Pierre Robin Sequence. http://t.co/I27EXtYWS8
@PicBadges
PierreRobinSequence
@prsfound
over 11 years ago
Help us raise awareness and finding for those effected with Pierre Robin Sequence... http://t.co/xiAKCyAw2O
PierreRobinSequence
@prsfound
over 11 years ago
Check out Pierre Robin Sequence Foundation! Available for the next 10 days via @Teespring: http://t.co/7I9pygZF9B
PierreRobinSequence
@prsfound
over 11 years ago
Please vote for us: http://t.co/uqbcBS5Xb1
#prsawareness
prsfound
retweeted
Dr. Dave Stukus
@AllergyKidsDoc
over 11 years ago
Actual discussion: Parent "I want
#Ebola
vaccine for my child" Doc "There isn't one, but we have
#flushot
" Parent "We don't believe in that"
PierreRobinSequence
@prsfound
over 11 years ago
#PRSawareness
PierreRobinSequence
@prsfound
over 11 years ago
@RareDiseaseUntd and thank you :)
PierreRobinSequence
@prsfound
over 11 years ago
Happy Halloween to all.
#PRS
PierreRobinSequence
@prsfound
over 11 years ago
Pierre Robin Sequence Foundation - http://t.co/73xUWAyF7N
PierreRobinSequence
@prsfound
about 12 years ago
PierreRobinSequence
@prsfound
over 12 years ago
The overall objective of
#RareDisease
Day is 2 raise awareness amongst the public about
#rarediseases
& their impact on patients lives
#PRS
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