PSC Support

Patient organisation for primary sclerosing cholangitis. Info and support for patients | the PSC App | research towards a cure. #LetsBeatPSC #LetsBeatPSC

[PSC Support @PSCSupportUK]

PSC Research progress is too slow. We need to do more, faster because people with PSC don't have the luxury of time. By 2030, we will fund and support PSC research offering over £1 million in grants to researchers. Consider making a donation https://t.co/GVfTgJsCbK #Mission2030

[PSC Support @PSCSupportUK]

Staying positive is easier said than done. One of our supporters shared this quote while speaking about her journey at one of our Info Days. It brings her comfort, we hope it does the same for you.
Our info & support support services are here for you 🔗 https://t.co/2SOsSo6ukz

[PSC Support @PSCSupportUK]

It takes a village 💙 THANK YOU to our 80+ volunteers giving their time to the PSC community in so many different ways. Volunteers are involved and contribute to all aspects of our work. Learn more ➡️ https://t.co/Kvz76ZBgvV
#VolunteersWeek2026 #PSCSupport #LetsBeatPSC

[PSC Support @PSCSupportUK]

What’s the latest in global PSC research? 🧬 Join our live webinar with Prof Palak Trivedi as he breaks down the highlights from the EASL Congress into insights for future treatments and patient care. Includes a live Q&A!
🗓️ Thu 25 June
🎟️ Register free: https://t.co/ksGIe6dH5S

[PSC Support @PSCSupportUK]

Good luck to Elliot, who is taking part in the Great Manchester Run this Sunday alongside his dad, Tony, and his brother-in-law, Neil, to raise vital funds for PSC Support. It’s a cause close to their hearts, as Elliot’s partner, Kelly, lives with PSC. https://t.co/AzyzWujqJV

[PSC Support @PSCSupportUK]

We love a good action shot! 🤩 Check out Maria leaping for joy after #ParisMarathon last month. We have charity places in over 900 events across the UK (and a few in Europe too!). Email at [email protected] for a chat so we can help. #LetsBeatPSC #PSCSupport

[PSC Support @PSCSupportUK]

From denial at diagnosis to an absolute powerhouse for our community - Carol is an inspiration. She raised £9.6k running a marathon & later led our #20KYourWay challenge which raised over £25k! Her advice? "Life is for living."
Want to share your story? 📩 [email protected]

[PSC Support @PSCSupportUK]

5 runners. 26.2 miles. Over £26,000 raised! 🏃‍♂️🎉
A HUGE thank you to our London Marathon 2026 team & the Loizias Foundation for providing £5k in match funding for Dr Joshi (whose face hurt from smiling so much!).
Inspired? Apply for a 2027 place today: https://t.co/8Us2YMBHHQ

[PSC Support @PSCSupportUK]

We’ve arrived! 🇪🇸 Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy

[PSC Support @PSCSupportUK]

Talk about couples goals! Huge shoutout to Abbie, who recently braved the shave for PSC Support. The best part? She now has matching haircuts with her partner Miguel and the amazing friend who took on the challenge with her!
Before & after pics 👇 #LetsBeatPSC #BraveTheShave

[PSC Support @PSCSupportUK]

Exciting news: We're growing! To continue to deliver our strategy, we’re investing in a full-time employed Research and Advocacy Officer. Could this be the perfect role for you? 🔗 https://t.co/n58QoBV4zz
#LetsBeatPSC #Hiring #CharityJobs #WeAreRecruiting #PSCResearch

[PSC Support @PSCSupportUK]

Best of luck to our Edinburgh Marathon Festival runner representing #TeamPSCSupport today! Enjoy the sounds of bagpipes in the air and the Scottish wind in your face. You got this! If you're feeling inspired we can help: https://t.co/ESBn5pVKm9 #LetsBeatPSC

[PSC Support @PSCSupportUK]

After her son was diagnosed with PSC & IBD Julie felt helpless. "As the disease progresses, Jack will eventually need a liver transplant. This may be the only way for him to survive." This weekend she's walking 100kms to raise funds & awareness. ➡️https://t.co/WdAgpg2Sve

[PSC Support @PSCSupportUK]

Big Give Small Charity Week is coming! Our goal is to raise £20,000 to fund PSC research. For one week only, from 22-29 June, every pound you donate will be doubled. And if you’re a UK taxpayer and add Gift Aid, £1 becomes £2.25!
👉 Find out more: https://t.co/P1IdZez19n

[PSC Support @PSCSupportUK]

This #ThankYouThursday we're thrilled to announce that we have secured funding from The James Tudor Foundation to keep our vital helpline running for another full year! 👉 Our helpline is here for you, get in touch here: https://t.co/RThNwpY3EL
#PSCSupport #LetsBeatPSC

[PSC Support @PSCSupportUK]

Are there any PSC clinical trials recruiting right now? Why yes, yes there are!
https://t.co/qCyVviB3FZ #PSCSupport #LetsBeatPSC #ClinicalTrialsDay2026 #RareDiseaseWarrior #MedicalBreakthrough #ResearchMatters #PatientPower

[PSC Support @PSCSupportUK]

Up to 80% of people with PSC have IBD, making annual colonoscopies a regular routine. Many people report that the worst part isn’t the colonoscopy itself but the bowel prep. The PSC community have shared their best hacks. ⤵️
https://t.co/N0TdbExSwT #WorldIBDDay #LetsBeatPSC

[PSC Support @PSCSupportUK]

Why do we co-author scientific papers? To make sure the researchers understand the reality of living with PSC. We’re a voice in the lab, shaping the future of care through global collaboration. See our recently updated Publications List: https://t.co/55f58Itfsv
#LetsBeatPSC

[PSC Support @PSCSupportUK]

We're working hard to find a cure or treatment for PSC. But we can't do it without our volunteers. If you are someone with PSC, or a close family member of someone with PSC, consider joining one of our patient panels to share your views: https://t.co/GjN4dEJ74J #LetsBeatPSC

[PSC Support @PSCSupportUK]

Note: Volixibat targets symptom control; it is not yet known if it affects underlying liver disease progression. Common side effects included stomach issues (like diarrhoea). Read our full, plain-English breakdown here: 🔗 https://t.co/hQsP0ElQ53 (3/3)

[PSC Support @PSCSupportUK]

📢 Encouraging clinical trial data: Mirum Pharmaceuticals has announced positive results from its global VISTAS Phase 2b trial evaluating volixibat. Data shows the experimental medicine significantly reduces severe liver-related itch in adults with PSC. (1/3)

[PSC Support @PSCSupportUK]

More than half of participants (55.6%) taking volixibat saw their daily itch scores drop by 2+ points on a 0–10 scale, with improvements seen within 1–2 weeks. Volixibat helps clear bile acids in the gut to reduce the daily symptom burden of cholestatic pruritus. (2/3)