Melanie Gibson

Paediatric Occupational Therapist and a Consultant with Arbonne International - on a mission to raise awareness about hidden illness #eds #🦓 views are my own.

[Melanie Gibson @purpleanie]

Celebrating AHP Day 2020 today and this year more than ever, thank you to immediate-colleagues and wider AHP team who inspire, support and keep the cogs turning #AHPsDay #AHPsDay2020 #AHPDayScot #connect #inspire #celebrate #appreciate

[Melanie Gibson @purpleanie]

What a brilliant social media for healthcare workshop today, a hands on tour into the world of virtual reality and exploring the therapeutic potential of this technology #DigitalCYPOT #VirtualReality #OccupationalTherapy #Motivation

[Ehlers-Danlos Support UK @ehlersdanlosuk]

Current Ehlers-Danlos syndrome research is predominantly medical, focusing on symptom management. There is limited research into the experience of EDS and even less on young adults https://t.co/PFWm43UQpn

#EhlersDanlosSyndrome

[autism speaks @autismspeaks]

7 ways to support those with autism during autism acceptance month. Read more:https://t.co/skh4hYl6F6

[Professor Lara Bloom @LaraBloom]

Thinking back to our conference in India last January. I met a wonderful family & one of their children has EDS & left a real impression on me. Her name is Malvika Satish, I just found out she has finished writing a booker called “The Little Zebra” and I can’t wait to read it!

[Rare Disease UK @rarediseaseuk]

Why not read up on the Scottish #RareDiseaseDay reception here:
⚡️ “Scottish Rare Disease Day Reception 2018” by @rarediseaseuk
https://t.co/NcQ6obzvmd
You can also read Rebecca's speech from the evening here: https://t.co/7BJ7mNhUWu

[The Ehlers-Danlos Society @TheEDSociety]

https://t.co/n9uYn3tRVn

[Rare Disease UK @rarediseaseuk]

Patients tell us that one of the hardest things about having a #raredisease is that often their doctor may not have much information. You can find out more about where to look for information, and how to know if it's reliable by visiting our page: https://t.co/4pa2dkG8BP

[Rare Disease UK @rarediseaseuk]

Thank you for participating in #RareDiseaseDay! Great photos! https://t.co/zRypz2IRL7

[Rare Disease UK @rarediseaseuk]

1 in 17 people will be affected by a rare disease at some point in their lives. Read patient stories and play 'spot the rare' here: https://t.co/CcUiHjMmnO
#1in17 #RareDiseaseDay Please share to raise awareness!

[Judy Katz @JudyKatzOTR]

Great article on #executivefunction @STARInst_SPD https://t.co/1YPSe6ibxJ

[Catherine McDerment @cmcdlot]

Fantastic energy in the room at today's Ready to Act improvement forum in Lothian. Sharing best and most productive experiences to date and identifying key change ideas. @NatLeadAHPCYP @claireahped @LothianQuality @lynneahpd

[Melanie Gibson @purpleanie]

Steps forward, brilliant! https://t.co/7bsmLFdpOG

[The Ehlers-Danlos Society @TheEDSociety]

In March 2017, the EDS International Consortium introduced 245 pages of the first examination of EDS in almost 20 years, as well as articles about various comorbidities. We introduce here the journal papers written in language accessible by anyone.

https://t.co/jJNQtmaUaC

[Melanie Gibson @purpleanie]

Amazing the daft wee things you achieve during a #snowday deleting 4000 photos taking up space… https://t.co/OVWgx9gxJ9

[Gene People @GenePeopleUK]

Together we are stronger. While individually, each of the 6,000 - 8,000 genetic disorders is rare, collectively they affect more than two million people in the UK including more than half a million children #ShowYourRare #RareDiseaseDay2018

[The Ehlers-Danlos Society @TheEDSociety]

"They need to understand that we are very real. We are more than a brief mention in medical school. To the world, we may be rare — to us, this is 100% real life.”

https://t.co/6uzh99wDmd

[Melanie Gibson @purpleanie]

The Spoon Theory - a great analogy to help explain, raise awareness and understanding about living with a hidden illness- we use it all the time- here’s my scoop about spoons #EhlersDanlosSyndrome #ChronicPain #raisingawareness #spoonielife https://t.co/IZsSlZ13NH

[The Ehlers-Danlos Society @TheEDSociety]

The Food and Drug Administration ( FDA) is currently taking comments from patients, caregivers, and medical providers about it's latest proposed pain management recommendations. Share your thoughts by March 16th. Every voice counts!

https://t.co/JRjmkljPyL

[Rare Disease UK @rarediseaseuk]

Imagine falling ill and waiting 4 years to get a final diagnosis. That’s the average wait for people living with a rare disease. Help us change that. Learn more about rare diseases and the 1 in 17 people in the UK who will be affected in their lifetime. #RareDiseaseDay #1in17

[Melanie Gibson @purpleanie]

Fantastic news #EhlersDanlosSyndrome #Awareness https://t.co/fn9XqEL4L9